Fibromyalgia Support Group

You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.

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A Million Health Scares and Fibro/CFS

Mystic
Mystic

Hi all! I'm new to the group. Actually, I've been a member of Daily Strength for years, but I never posted in a group before. I guess I was trying to deny that CFS/Fibro is a part of my identity--an awful part of my life. I was diagnosed 13 years ago after a bad case of pneumonia and a long course of toxic antibiotics.




Since then, I've struggled to maintain a normal and active life (which I have acheived), but once a year a new symptom emerges and frightens me, sending me off to doctors. Skin issues; swollen glands (different places all over my body); nail changes; digestive issues; swelling around my eyes, cysts in my thyroid and breasts; dizziness upon standing; night sweats; heart palpatations; throat tightness; ringing in ears; pronounced heartbeat in ears; blurry vision; brain fog; feeling of fullness on my left side; arm and leg swelling; rashes; lower back pain when standing;muscle twitching; numbness and tingling; leg heaviness and PAIN,  etc, etc, etc, etc. These crazy syptoms come and go, each time sending me off to doctors who run a battery of tests that produce inconclusive results. Biopsies, scans, stains--you name it, I've had it. I vascilate between believing that I am a hypochondriac, and acknowledging that my symptoms are real and my concerns are valid. Has anyone else experienced a million health scares stemming from their Fibro/CFS?


twinmomab
twinmomab
Welcome to the group. I'm glad you decided to post even though you've been lurking for sometime. I have a large portion of your symptoms and I'm usually told, hypothryoidism, fibro, IBS-C, and Small Fiber Neuropathy. And I've been through the ringer of very expensive test and MRI's and constant blood work all to hear I'm fine. Yeah, I'm really fine with all this pain, ringing in my ears, stomach pain, and neuropathy pain and numbness. It gets old having everything boiled down to Fibro from the doctors. Just know you're not alone. I hope you have a good weekend and start posting in our daily check-in.
Pam1100
Pam1100
Welcome to the group! Yes, I read your post and yes we have all had some of the same symptoms if not all of them. I joined the group a few months ago and I am glad I did. It is hard to explain to someone what you are going through when you look normal. So this group really helps me maintain my sanity. Even the doctors look at you like you are crazy. I have had every test as well. So tired of doctors and tests. I/We all know exactly what you are talking about and experiencing. This group helps you cope with it because we are all dealing with Fibro here. Welcome again, did not mean to keep going on and on. But we get it life sucks having Fibro.

Have a wonderful day!


Pam
jannytheresa
jannytheresa
Hi
I can relate. I am in the middle of new symptoms along with the old.
The new symptoms are scaring me, as well. I do get bothered when
we are dismissed because of fibro and the depression that goes with it.
There have been times when I have truly been seriously ill and not taken
as seriously as I should have. I find that having fibro is very isolating as well.
Mystic
Mystic
Thank you all so much. I'm literally in tears. I had no idea how much I needed to connect with other people who are going through what I have been going through for so long.

I am grateful for each and every response.
Pam1100
Pam1100
Good morning,
This site has been good for me. Friends and family don't understand Fibro. They can not tell by looking at us because we look perfectly normal on the outside but our bodies are screaming in the inside. Please don't feel like you are alone in this. It hurts me to type. I have pain all over my body. In my fingers, wrists, arms, shoulders, neck, back , knees, ect....

Please don't forget to sign in to our daily check -in every morning with (Leo), if you can each morning. This is where we can talk about our pain/feelings to each other, let out our frustrations about Fibro or whatever you like to talk about. ..... Have a great weekend!


Pam
Mystic
Mystic
Thank you Pam!