Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
Let me start with telling you about me. I have been on DS for a few years my name is Leigh-Ann and I turn 26 next week I have RA and I also have ankles that are bone on bone with very little cartilage my doctor has litterly told me I have ankles of 70 year old. I hope to make some new friends and i value your thoughts and opinions and sorry for the long post. :)
So I have Rheumatoid Arthritis and my rheumy has told me that I might have fibro as well because one time he was doing a joint check to see how much of my 26 upper joints were swollen and some weren't swollen but the area still hurt and I asked why do I have all this pain if there is no swelling and his answer was its probably because you have some fibro tendencies. That is all he has ever said he never mention Fibro ever again.
Now on to my question
Lately I have been having problems with feeling heat. Mainly when it comes to water. Now it doesn't feel like its ice cold it because just feels luke warm to me. My mom has tested the water for me and she says that it is normally way hotter then just luke warm. Well when I was researching on line I read that this can happen with people with Fibro.
I was just wondering if anyone has had any problems not being able to feel heat. I know its hotter then what I am feeling because I still all the steam raising up from it. I have an appointment with my rheumy on Monday i just wanted your feedback. Like I said the only time he meat ion fibro was that one appointment he has never said anything beyoung that which is weird because I would think he would want to get to the bottom of my pain.
So I have Rheumatoid Arthritis and my rheumy has told me that I might have fibro as well because one time he was doing a joint check to see how much of my 26 upper joints were swollen and some weren't swollen but the area still hurt and I asked why do I have all this pain if there is no swelling and his answer was its probably because you have some fibro tendencies. That is all he has ever said he never mention Fibro ever again.
Now on to my question
Lately I have been having problems with feeling heat. Mainly when it comes to water. Now it doesn't feel like its ice cold it because just feels luke warm to me. My mom has tested the water for me and she says that it is normally way hotter then just luke warm. Well when I was researching on line I read that this can happen with people with Fibro.
I was just wondering if anyone has had any problems not being able to feel heat. I know its hotter then what I am feeling because I still all the steam raising up from it. I have an appointment with my rheumy on Monday i just wanted your feedback. Like I said the only time he meat ion fibro was that one appointment he has never said anything beyoung that which is weird because I would think he would want to get to the bottom of my pain.
I went for some aqua therapy years back and I recall reading somewhere that it is important for the water temp to be within a certain range. I've never heard of what you are describing--I hope if you find something out, you'll let us know.
Read the comments here - rawarrior.com/rheumatoid-arthritis-swelling-take-two/?show=comments#comment-73966
Many people with RA have slight swelling and some swelling that's not visible on clinical examination.
Have you had an MRI?