Hi, I don't do well on most medications due to side effects. This one, was the worst. I ended up sleeping for 10-12 hrs, groggy, and the worst was not being able to stop pacing my kitchen table crying for hours and hours. Not fun and went off it.

My daughter take topamax. She has fibro and other health issues. She is taking it for her migraines. It is suppose to "prevent" migraines. The side effects bothered her for a while. I think it has helped her some. Maybe that completely. I hope this medicine will work for you.

I am currently on Topomax and Keppra for chronic and nerve pain in both hands and arms. It is being increased gradually over the course of the next 6 months because of my sensitivity to medication. It is hoped I will eventually work up to 1200mg of Keppra and 1200mg of Topomax daily. I have to take sodium bicarbonate supplements to avoid possible hyper ventilation side effects. I am willing to chance it. The pain is so unbearable and nothing else has helped. I have actually started seeing some results with this regiment so I may not have to go that high. I hope you find something that works for you.

I take topamax for migraines (associated with fibro).... in the beginning I had some tingling in my face and hands but it went away after about a month. They said it was a common side effect of topamax and it usually goes away. After finding the right dosage for me (playing around with the dosage) my migraines almost completely went away. Now I just get mild head aches every now and then.

I tried it for fibro related migraines and it made my stomach very sick - but alot of meds do that to me - I have a very sensitive stomach due to my stomach illnesses. So anyways , I had to stop taking it rather quickly.

If you try it I hope it helps you.

I take Topamax 400 mil daily for help with bi-polar disorder, or depression, I'm not sure anymore. But I do have fibro and you can't touch me. I can can not touch myself! To shower is painful. I doesn't help my fibro at all. I tried Lyrcia but I started gaining weight so I stopped taking it. Hope this is some help to some people.

God bless everyone!

I started taking Topamax for chronic Migraine (20 a month). It is a preventative. I take 300 a day. It took almost an entire year to get to that dosage level.
You need to start slow, and work your way up. Side effects can be difficult to manage, but I refused to give up on that medication.

I didn't know it was used to treat Fibro. I don't feel it helps my fibro at all.

Good luck.

I take topomax for migraines and discovered some mild fibro relief as well. I mentioned it to my neurologist, and she said some patients do report that, but in her opinion not often enough that she would recommend topomax as a fibro treatment b/c of side effects. She is quite conservative in her dosing though. I am sure she would balk at hearing someone taking 1200mg, as she didn't want me going above 200.