Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
Hi guys, I once again need your help. Caleb's rheum has declined to help us with PE and any modifications that should be done for Caleb and deferred to our ped (ped is local, Rheum is 90 mins away, rheum thinks ped will be more familiar with the program here). Anyway, our ped always tells me that I know more about FMS than he does, so he often defers to me and I think he will on this PE thing IF I bring in the right resources. So I'm copying pages and pages of FM for Dummies, but would like a few other sources too. What I'm looking for is sources that say gentle exercise (walking, swimming) is okay, whereas running, jumping, etc. are not. The PE program at our local middle school is run by Nazis, seriously, my healthy son was constantly getting hurt because they do ridiculously hard things with no warm up/training.
In addition, I need things that talk about needing rest when really hurting and avoiding working out outside when it's cold.
So I really want him exempt from most everything but walking. And to let him beg off when he's hurting and avoid going outside when cold. So, any sources/links would be appreciated!
Thanks,
Ty
Mom to Caleb, 11 year old FMS sufferer
In addition, I need things that talk about needing rest when really hurting and avoiding working out outside when it's cold.
So I really want him exempt from most everything but walking. And to let him beg off when he's hurting and avoid going outside when cold. So, any sources/links would be appreciated!
Thanks,
Ty
Mom to Caleb, 11 year old FMS sufferer
Unfortunately, All of my references are from the 80s and 90s, I went through an amazing pain management program. The goal was to taper us off of meds, It focused on gentle, no impact exercises. walking,, meditation, guided imagry, occupational therapy, healthy eating, and group therapy. We started very. slowly We met for 6 hours 4 times a week. It lasted for an entire year. It was based on the research by Robert Bennett's Mind/Body Connection at Harvard Medical School.
My pain management was at Kaiser-Permanente in Hayward, Ca. I don't know if they have any info on the web; But you should find something about Mind/Body medicine.
Continue advocating for your son. You are a good mom.
Check out zombiekittens post Big day tomorrow. There is a link to the Cleveland Clinic that has a similar program that I went through.
Hugs