Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
osted on 12/14/13, 10:34 pm
I have been undergoing several tests lately. I want to know, evidence of diagnoses. So, I had a lot of blood taken. Lyme disease - negative... ANA IFA - negative...my first one was positive a year ago. CRP was 4.1 which is high...evidence of inflammation... SED Rate was 46 which is high...evidence of inflammation/infection... HEP panel all negative...MRSA negative. So my doc tells me the big reading is indicative of fibro and arthritis. I am also undergoing sleep studies, so far I have had three. I have been tested for sleep apnea, narcolepsy, or any other sleep disorder. Results are back rem sleep disorder, with some sleep apnea.
I know my body is trashed,I just want evidence to file for disability. I have lived in pain for 29 years, so far my doc is doing good at my drug cocktail so i can sleep at night, I do no pain meds during the day, but I do a little work and fall asleep, sometimes for a couple hours...it is just not right...it is as frustrating as hell!!! I miss being able to clean my house in a day, not a week...
I am sorry this has turned into a rant! I hope everyone is having a wonderful weekend.
I have been undergoing several tests lately. I want to know, evidence of diagnoses. So, I had a lot of blood taken. Lyme disease - negative... ANA IFA - negative...my first one was positive a year ago. CRP was 4.1 which is high...evidence of inflammation... SED Rate was 46 which is high...evidence of inflammation/infection... HEP panel all negative...MRSA negative. So my doc tells me the big reading is indicative of fibro and arthritis. I am also undergoing sleep studies, so far I have had three. I have been tested for sleep apnea, narcolepsy, or any other sleep disorder. Results are back rem sleep disorder, with some sleep apnea.
I know my body is trashed,I just want evidence to file for disability. I have lived in pain for 29 years, so far my doc is doing good at my drug cocktail so i can sleep at night, I do no pain meds during the day, but I do a little work and fall asleep, sometimes for a couple hours...it is just not right...it is as frustrating as hell!!! I miss being able to clean my house in a day, not a week...
I am sorry this has turned into a rant! I hope everyone is having a wonderful weekend.
It's good to ahve the evidence for disability.
For the rest--- yes. Very frustrating! I am only 43 and nap more than my elderly mama! Argh!
Have a great weekend!
I get bloodwork every 6 months and always some other test,
I understand, I keep thinking this is a dirty trick played on us and I am tired of the game.
I am glad you have something to help you sleep at night,
Just keep living day by day and hopefully tomorrow we will be better.
I know what you mean about taking a week to clean the house!
I should be cleaning now but my back is hurting to bad to vaccum.
I have to prioritize what I want to do for myself and am learning to ask my grown kids and husband to help out with dinner dishes, putting up groceries etc. Everyone always looked to me to get the job done, now I'm learning if I want the job done I have to direct the others in the house to help.
Learning to live with Fibro means learning about yourself all over again.
I hope you pain is light, your sleep is good. Tonsie