Fibromyalgia Support Group

You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.

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suggestions

luna991
luna991
Hi

I havee been unwell with CFS and fibro for at least 8 years, for the last 4 years I have been part time and have been managing OK not brilliantly still don't have much of a social life and sometimes have relapses.

I have decided to take some time from work to work on getting toma more stable place and then to try and gradually build my stamina

Basically since I have been off doing less, I feel worse than ever, some symptoms that I have not had for a while have returned, such as the feeling I get when I've really overdone things the heart pounding and shakey feeling, and weakness and more cognitive symptoms, basically I'm just feeling worse overall, even my pain levels seem higher.

I'm so confused as thought I would feel better off of work, any suggestions?

Luna x
beclinkay
beclinkay
I still have all the problems I had when I was working. Unfortunately they don't go away when we quit working. It is usually easier to take the pain when we can rest at home though. Working does magnify things it seems.

Sorry you are struggling so much.
bluesun
bluesun
When I stopped working I went through a period when I was worse, but that's probably because I was getting off medications from bad side effects and then trying news ones and the adjustment period was pretty rough on me. PLus not mention that my migraines for some reason got a lot worse over the years and it took a while to find the right mediation and at the right dosage.

Anyway, I wasn't just trying new medications (and supplements) to try and feel better.... I also did aqua therapy a few times and that helped, too. Massage therapy was pretty helpful as well. I also had to try and settle into a routine. Walk around the block in the late afternoon, do a light swim 1-2x a week, start learning how to play an instrument, etc etc. These are just examples. Everyone is different and what works for some may not work for others.

I hope you find what helps you and you start to feel better soon. God bless! hugs.....
Christine1976
Christine1976
I find in much worse on the weekends when I'm just sitting around (because I'm so tired!). I've read that doing nothing (no movement, no exercise) can make you feels just as bad as if you've overdone it. And I do find that to be true with me.