Awee, Miss Cricket, I am so sorry to hear you are having a bad day. When a day starts off like that, it's hard to regroup. And then after being kicked around by employees to have your family do the same is just insult to injury....especially on the dreaded facebook (I have a mostly hate hate relationship w/it). First thing I would do is delete their comments!! Then, try to find on our discussions, "a day in the life of the fibro sufferer". It's an awesome explanation for ignoramous peeps.

Get some sass girl. Next time somebody makes a comment, fire back at them with one of the things we go through, like, "wouldn't you be cranky if you were in pain 24/7 and couldn't sleep??" (or fill in the blank) It's the invisible disease that makes this hard to deal with other people. Just know that you have a whole lot of love and support here. Hugs and prayers your way, JP

Thank you, jp, for the words. I must find this discussion but I highly doubt my siblings would read it. They would just laugh. I don't think they would understand until one of them gets fibro (my brother claims to have it but he makes fun of my fibro). If my oldest sister or third oldest sister got fibro, THEN they'd be all, "Poor me, I have fibro, boo hoo, you don't have it, Miss Cricket," When I totally do. I'm in total agony. While most of the time my fibro is fine, I go through times where it gets really bad.

Hello,

I am so sorry you had such a tough day!

I don't have much advice, just wanted to say you are not alone and there are people who understand and truly care.

I hope you have a much better day tomorrow!

Thank you! That is all I want! I'm so happy to have found this place where people understand what it's like to be in my shoes. Fibro blows!

Yes, fibro "blows chunks" as someone said recently :-)

But we are all in it together!

Definitely blows!! Like a seesaw, but eventually you will find your way of evening out the ups and downs.
Maybe the best way to deal with them is to be completely silent about your fibro. Don't talk about it at all. Then they won't know what to do.

Well, as I said in a previous post....that's my 2 cents which aren't really worth anything because the u.s. treasury is doing away with pennies!

It's a miserable boat, yep, but we'll row it with you:-)

And borrow some of my lion roar and hiss and snarl.... While silence will baffle them, a well-placed, "Of course I'm cranky, I'm talking to YOU" has worked wonders on my family. They never talk to me at all now. I find it incredibly peaceful this way. (Yes, I really said that. I was pushed to extremes. They were/are horrible toxic nasty screwed-up pathetic sad people, and always bugging me about helping them out in court.... nuff said.)

:-)

MissCricket,

I am so sorry for your pain. I totally understand. Just know that you are not alone. I will say a prayer that you will feel better soon. Gentle (((Hugs))) to you sweetie.

Miss Cricket,

I totally understand how you are feeling. I went through something pretty awful a few years ago I have a sibling that didn't believe I was sick. She told another relative that I was faking it and that there was nothing wrong with me! Of course I was devastated when I found out and it made things so much worse for me. Needless to say we don't talk to each other and I am finally to a place where I am fine with that. It really did take me a long time for this to happen but I am so much better now with it. Now, I am not saying I will never speak to her again after all we are family (whether I like it or not) there will be times that we will be in the same place and will see each other. I just treat her as I would any stranger that I had just met. I am cordial and that's it! I think that suits both of us just fine and doesn't make anyone else around us uncomfortable either.

I hope you can one day soon get to where relatives are not close enough to you to hurt you anymore. Sometimes simple avoidance can be best for all involved.

Hugs to you!!

Take Care, Dawn

Family members can be the cruelest sometimes. They think because they are your brother or sis that gives them some inherent right to be mean and it is justified. I have been told by a very good friend that there is a great book entitled "they can't drive you crazy if you take away the keys" :). I am going to read it when she is done with it! I KNOW how you feel about "I don't want to get up and go back to the hell I work at tomorrow". That is exactly how I felt and on Aug 23rd, my Drs took me out of work. My rheumy said that I had fought a long battle, but I need to face that I am disabled and working is not in my best interests health-wise. But it was in my best interest bill-paying-wise! Easy for him to say, he is a Dr. haha. I prayed hard about it and God showed me the path I needed to take. I took my own leap of Faith and let him remove me from work.
Steer clear as best you can of those that treat you bad. My sister and I don't even speak, but my other sister and I are as close as we can be, like two peas in a pod. No one has the right to judge anyone else. No one walks in my shoes but me. Let them know that anytime they want to trade places you are game. Keep your chin up, you don't suffer alone. Try to remember this always because all too often all of us feel too alone.

You guys are all so wonderful and amazing! Thank you all for the words of encouragement! Yes, most of my siblings are toxic. My third older sister invited me out to sushi yesterday with our older brother (the younger brother lives in Washington State). I was upset about not going but then I talked to my oldest sister this morning and she asks me, "Do you really want to go with THEM?" She was right. Both older brother and third sister are VERY toxic people. The last time my older brother and I went to lunch with our sisters, he stiffed the waitress and made her cry after insulting her. I felt REALLY BAD. I wish I had money to give her but I was broke. I know now at least if we go to eat, bring cash in case he stiffs the wait staff again.

I'm still in pain this afternoon, have to work again later today but the pain isn't as bad as it was yesterday, so that's a plus! :)

I'm sorry you had such a bad day. Hope today was better, and I hope it helps to know you're not alone.

Sorry you are being hurt so by your family. Family members can be so cruel to us. I've found sometimes we have to distance ourselves from family in order to take care of ourselves. Only fellow suffers really understand how it is. I think this site is a God send for all of us. Maybe just don't discuss your fibro with them. As jptexas suggested come up with some come backs to use on them. Some people have a hard time believing we are sick because we look healthy. Family that really cares will try to understand what you are dealing with. We are all here for you. I hope tomorrow is a better day for you. Saying prayers.

MissCricket.....I'm so very sorry for your toxic siblings! I agree stay away as much as possible, and try not to even mention fibro to them. Then come here to get the understanding and support you deserve! We care and we understand!

Hugs,
Elizabeth

I hate to say this, but with family like that who needs enemies. I am the 16th out of 17 kids, and in the past 10 years I only have contact with 2. There comes a time in life when you have to make a decision. I made mine and it was the best choice for me and my immediate family.

I am sorry you are having such a rough time of it. There will be better days, you have to believe. Everyone out there handles their pain in different ways, and carries it differently. I like DS because I have not seen any judgements as to the pain we all endure.

Goddess bless you

Dawnmarie