Hey welcome home hun.

Trapped? Maybe.
Angry...sure you deserve to be angry.

Sweetie, there isn't a single person here who has not had the same thoughts/feelings you have right now. We've been there.

Yes, it's frustrating to no end that docs haven't figured out Fibro....that they can only say it's it by ruling out other diseases/disorders and such. That they look at us like we are crazy or they scratch their heads wondering what the next move should be.

But I'm here to tell you that there is life with fibro. We each find it on our own journeys. Along that path you'll also stumble upon peace.

Yes, the more you research, the worse it sounds. Sometimes, the hard we try, the worse it gets....but we can do it. It does happen. We find life through it all.

Just hang tight, ask questions and you'll soon learn.

I dont know if you have been to a neurologist or rheumy but be sure you do. There are 6 other things that mimic fibro. Do you have the tenderpoints and widespread pain?

Hope you dont have fibro and something that can be fixed.

Im sorry you have to deal with this, but I wanted to say that if you are active and enjoy excersise there is absolutely no reason you cant still be as active and exercise as much as your body will let you. You will not harm yourself by doing what your body allows.

Go ahead and be angry, that's pretty natural I think.

Did you get any advice, meds, exercises from your dr? Can you ask to see a rheumatologist? They often have more knowledge, info, exercises, diet and supplement, ideas than your regular dr.

Welcome :) Lots of info and support here.

WELCOME... SORRY YOU HAVE FIBRO ... I WAS JUST DIGNOSED A FEW MONTHS AGO( FIBRO) , BUT DR SAID AND I KNOW I'VE BEEN DEALING WITH IT FOR YEARS, ALSO I HAVE LUPUS/MCTD AND MANY OTHER ILLNESS ! DENIAL IS WHAT YOU FEEL AT FIRST , IT WILL PASS THEN THE ANGER TAKE THE PLACE OF DENIAL ... IN TIME YOU WILL COME TO PEACE WITH THIS DISEASE ... SENDING YOU SOME LOVE AND COMFORT. HUGS & PRAYERS, JOBBIE

Sorry you have to meet us due to Fibro.
It is scary and agggravating to know one has this mysterious illness that Dr.s are only guessing how to treat.
Hang in there come back often and give us your imput or vent and pick up some ideas on your treatment and therapy.
Educate yourself and family about Fibro so they may get a little understanding of what you are going through.
For the love of your family try to turn your anger to strength in beating Fibro.
Good luck, see you soon.

Welcome to the group. I am sorry that you have been given this diagnosis. But as someone said, you don't have to quit your exercise, just learn to adapt to what your body will allow. Are you on any meds for your fibro? What kind of doc are you seeing?

Thankyou for everyone's advice. It has been helpful and comforting. I have seen a Rheumy doc, she was the one who confirmed it and told to get back with my GP to see what kind of treatment options are out there. I have aches all over sometimes but I don't know if that is fibro or cronic fatigue.
She also warned me about running into scams saying that they can cure it.
I will ask my GP about seeing a neurolegist. I was diagnosed with Akathesia 9yrs ago by a neurolegist. I don't know if seeing one can really help.
Thanks again for the support!

Welcome!

It sometimes helps me to remember that every medical condition was once a mystery to doctors. There is always hope that someone will figure out either a cure or at least a very effective treatment. IN the meantime, it is a pain in the behind to deal with the pain and limitations, but at least fibro isn't fatal.

This is why I love this group, all the advice, encouragement, understanding. It's been a year since I joined, and I can't imagine dealing with fibro, and all my other stuff, without my friends here.
I'm so glad you found us.

It's so great you enjoy exercise, as it is known to help with the pain and stiffness of fibro and other musculosceletal (sp) disorders. Just remember to listen to your body, and don't overdo it because it will come back and bite you... We tend to pay dearly for doing too much, but doing too little can be a problem too.

As for having to live with this for the rest of your life, try to concentrate on making it through the day. It sure seems less overwhelming when I look at it this way.

Like I said in my reply to another one of your posts, write me if you feel like venting, I'll be happy to listen. I've learned a lot from people here and from trying different things, I also have a wonderful doctor, now, who taught me so much about dealing with this. Even though, we are all different, and react to treatment and to the fibro itself differently, it helps to share experiences, and ideas.

The most important thing I learned in the past two years, since I started seeking help for this, is that you have to be your own advocate. You deserve the best treatment from the medical professionals, doctors, nurses, physical therapist, or anybody else you hire to be part of your medical team. If a doctor does not treat you right, if you don't get the respect and relief from pain you deserve, please don't settle for him/her just because they see you.
Your life is too precious too waste your time and your money on doctors who are not willing to give you all they got. Trust me, I've been there, done that. Don't let the doctor ever tell you, oh, there's no cure for fibro, so you are always gonna be in pain, it's normal. Also, don't let doctors blame every single pain you get, or any other symptom, on fibro. If you ever get a sudden increase in pain, or a new pain(new location, type of pain, intensity, frequency) please have it checked out. I know, switching doctors is not easy. Also, like most of us here, you are probably sick of going to the doctor. However, don't neglect any new, sudden pain or any new symptom that shows up out of the blue. Yes, it may be fibro, since it can cause so many symptoms, but, it may not be, it may be something really serious.

Just take care of yourself, listen to your body, and don't be afraid to ask for help. Until last May, I felt hopeless, fed up with fibro, with doctors, with all the financial problems caused by fibro, I could not see the proverbial "light at the end of the tunnel." I thought that I will always be in excruciating pain, and that there was nothing that could be done about it. I just felt like throwing in the towel.

Then, I found my current doctor, and during the first visit, he gave me the hope I lost after almost two years of going from doctor after doctor, specialist after specialist. Sure, I still have pain. I have some kind of systemic inflammatory condition in addition to fibro which causes inflammation and pain in my entire spine, and most of my other joints. However, the pain is not as intense all the time, especially fibro pain. I've also had improvement in many other symptoms. So, THERE IS HOPE for a good life despite of fibro.

I hope you will come here often, and get as much help and comfort from the members here as I have.

Take care.

I AM FEELING THESAME WAY I JUST WAS DIGNOSE WITH FIBRO, SEPT 28 FEELING ANGRY, SAD. SOMETIME FRUSTRATED SEEING SO MANY DOCTORS NO ANSWERS, BUT NOW I KNOW WHAT I AM FIGHTING AGAINST, AND I AM GOING TO BEAT THIS THING! I WON'T LET IT GET ME DOWN ANYMORE! DOCTORS LOOK AT ME LIKE I AM CRAZY! GOOD AND BAD DAYS! PUT ME ON SEVELLA WENT INTO DEEP DEPRESSION AND A LOT OF PAIN, WILL ATTEND A SUPPORT GROUP ON THE 27 OF THIS MONTH ALSO I AM DETERMINED TO WIN! PRAISE GOD!

Welcome to the group. Yes, it's confusing, annoying, terrifying, frustrating, and depressing. Yes, some of us would love to just magic fibromyalgia right out of our lives. There will be good days, bad days, and days you can't believe you have to go through. But you're not alone. Everyone here goes through the first year, just not in the same way. I learned all I could, starting with treatment options. It's been three years now, and I'm still dealing with some of the things you're going through. It will get better. We're all here for you.

P.S: there are few problems that cannot be solved with love, kindness, and a long hot bubble bath.

Hi there

I was diagnosed a couple of months ago... I am also angry and frustrated that I have fybro and that I will have to be on meds... This support group has been amazing though, just reading everyone's thoughts and stories... it is so comforting to know that you are not alone out there. I am sure my friends think I am a complete hypochondriac as there is always something sore... here everybody understands and it is so nice to know that I am not the only one going through highs and lows. Venting is good and my rheumatologist recommended it. Good luck, there is a lot of support in this group, hope you find some peace :-)

Great post by ja36, I agree.

Most of us have many things that we have to live with for the rest of our lives. Most of them have just not been named or labelled. Don't sweat the label and it does not have to stop you from doing anything that you still want to do. The physical recovery from some things may be a bit longer and the aches most persistent. But bottom line (in my opinion) you will be worse off if you quit doing the things you really want to do.