Fibromites Community Group
This group has been created for people who suffer from Arthritis, Depression, Lupus, IBS, - all o f which are the cling-a-longs to FIBROMYALGIA "fibro" and anyone else who might need someone to listen and in need of help. We welcome those with Chronic Fatigue Syndrome CFS and Multiple Sclerosis MS as well as any thing else you would like.
I have suffered a lot with my fibro and other medical problems. For a moment stop and think about what fibro has given you beyond the pain. I totally believe in Karma. I often wonder how I was unresponsive to someone elses need in a past life that has lead to my having fibro in this one.
Fibro has taught me the following.
1. I must pace myself. Gone are the days of my being a whirling dervish able to accomplish many things in one day.
2. When I see something or someone who has an affliction even if it is just their weight, I do not think a negative thought. I think compassion for them and hope they can find peace in their struggles.
3. I have learned that I must take really good care of myself and not extend myself so that others are happy. I try to put my health first.
4. I have learned that if one has fibro , it is no less a problem for me than the person suffering with cancer. All problems are problems of equal value and pain.
5, I work at not sweating the small stuff because in doing that the big fibro flare will surely come and get me.
6. I learned to heal myself because really medicine has not cured anything since polio because there is no money in coming up with a cure. Listen to your body, it will tell you what to do and what not to do.
what gifts has your fibro given you?
Fibro has taught me the following.
1. I must pace myself. Gone are the days of my being a whirling dervish able to accomplish many things in one day.
2. When I see something or someone who has an affliction even if it is just their weight, I do not think a negative thought. I think compassion for them and hope they can find peace in their struggles.
3. I have learned that I must take really good care of myself and not extend myself so that others are happy. I try to put my health first.
4. I have learned that if one has fibro , it is no less a problem for me than the person suffering with cancer. All problems are problems of equal value and pain.
5, I work at not sweating the small stuff because in doing that the big fibro flare will surely come and get me.
6. I learned to heal myself because really medicine has not cured anything since polio because there is no money in coming up with a cure. Listen to your body, it will tell you what to do and what not to do.
what gifts has your fibro given you?
I've met a lot of friends here and I'm very thankful for that. I'm alive and healty it's just FIBRO I can deal with it.
I cannot always "power through" the pain...
I cannot do everything myself...
Basically, (that word never looks right), FM has humbled me, something no one/nothing had been able to do before. It has also made me more compassionate to others, especially with FM.
Here are 10 damaging things to watch out for:
1.Overdoing it. Pacing is essential for us - we'll only get worse if we do more than our bodies can handle.
2.Criticizing yourself. You know better than anyone else that you really are sick, so give yourself a break already! When you catch yourself, try replacing the critical message with something like, "I'm doing the best I can and that's all I can do." (It sounds corny, but it works.)
3.Blaming yourself. It's not like you asked for a chronic, debilitating illness to come along and knock you right out of your life. No matter what some people may say, your illness is not your fault!
4.Believing other peoples' negative opinions. It's always going to hurt when someone says you're "lazy" or "crazy" or "worthless," but you can't afford to believe them. Someone who keeps going, the best they can, through adversity is stronger and more capable than most. That's what you need to remember.
5.Having unrealistic positive expectations. We tend to put all of our hope and faith in whatever treatment we're trying, and all that does is set us up for a major disappointment when we're not suddenly cured. Approach treatments with the attitude that any improvement is a success, and remember that we generally need to use multiple treatments to truly make progress.
6.Having unrealistic negative expectations. On the flip side of the coin, trying treatment after treatment without success can make you feel like nothing's going to help at all, ever. That can prevent you from trying new treatments that might work, and it can also cause a reverse-placebo effect - it won't work because you expect it not to.
7.Putting yourself last. A lot of us are willing to put all our energy into the people around us, our jobs, our responsibilities ... only to have nothing left for ourselves. It doesn't work. If you don't take care of yourself first, you'll have less and less to give until there's nothing left - because you'll keep getting sicker. Taking care of yourself is survival, not selfishness.
8.Giving up too soon. When you try a new treatment or lifestyle change, it can take time for the effect to be felt. If you give up too soon, you can really miss out on long-term benefits. Give your body time to adjust to the change.