Essential Tremor Support Group
Essential Tremor (ET) is a neurological disorder characterized by shaking of hands (and sometimes other parts of the body including the head), evoked by intentional movements. The incidence is unknown, but is estimated to be as common as one person in 20, and it is the most common type of tremor and also the most commonly observed movement disorder.
I guess I've made some jokes about "Shaken, not stirred" and stuff like that, but mostly I think my friends and family have grown used to ignoring my shaking and hardly notice any more.
Also, I'm very oblivious to my surroundings, so maybe people are looking without me noticing, but what I don't know can't hurt me.
I have a couple friends who will be shaky after a few cups of coffee or a drinking binge (during college) and then say something like "Looks like I've been around you too much." I think most people close to us mean well and don't know that some comments can be hurtful or cause a sting of pain for a moment because it makes me think about things I can't do or that there is something different about me. It's easy to make light of it to get people to move on from talking about it but I feel like it makes me almost feel worse about it. I don't know if that's helpful or not but that's my experience.
Lavaliere: I understand that. I was like that for years. I would make the jokes, but whenever someone else said something It would actually hurt. There are certain things, still, that really DO hurt my feelings. The "I've been around you too much" comments still hurt. Kinda makes me wonder if people legitimately think that what we have is contagious. It's not a good feeling to be singled out for it. I was all through high school, so I became really reserved with 90% of the population. During that time I also became severely depressed. It wasn't good. I know this makes me sound kinda like a hack, but... I decided recently, and I sincerely mean recently, that I had the choice of how I felt. I could take this all in stride and handle this stuff a lot better than anyone could expect of me, or I could become depressed again. Honestly, I don't see in the middle ground. For others, it's definitely possible.
With my tremors In tell everyone that my wife doesn't need any battery implements when we go away for the weekend. I also tell some people, mostly guys that I really enjoy myself when I take a leak. I hope these descriptions don't offend anyone, that was not intended. The family joke is that I'm the team handicap when we play pictionary. I could go on and on, but that's how I treat these situations. I;'ve had situations where my wife and I go out to eat and it's very stressful because I spill food everywhere, sometime it's too much and I completely give up after awhile., and I'm done. I try to use humor in everything, people probably think I'm a little off the wall because of my sense of humor, but that's who I am.
I've been suffering with it for 30 or so years, never took anything to slow it down and it has progressed from my hands down to my feet, but only when those limbs are called upon to do something. Before this support group, I had never heard of ET being a constant motion. Perhaps there are different degrees of infection.
here's a few... which may be offensive to some so please... don't take offense. Just sharing and I don't mean to offend!!
When I told one of my best friends (who's gay) and I haven't actually seen in person in 5 years "Girl! Do you know what that means for your hubs??? He's so lucky!".... yea, he's dirty. I think the implication is obvious. :P
When I told my mom... before and after diagnosis 'you've "got the hippy hippy shaaakes"... it's an old song for those that don't know and we sing it accordingly.
My husband "it's okay honey... there's lots of ways we can put that to good use!"... he's got jokes :)
Lots and lots of good jokes to be had by all. Sometimes it can be somewhat hurtful but it's just a way to handle it. I laugh at myself and they laugh with me. :)