Essential Tremor Support Group

Essential Tremor (ET) is a neurological disorder characterized by shaking of hands (and sometimes other parts of the body including the head), evoked by intentional movements. The incidence is unknown, but is estimated to be as common as one person in 20, and it is the most common type of tremor and also the most commonly observed movement disorder.

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Brain & Nervous System
/ Essential Tremor Support Group

Essential Tremor

Boofy
Boofy


Hello to all ,I have just joined and have had Essential Tremor for about 4 years ,effects my head ,voice and jaw ,good days ,and bad days ,I also get an internal tremor ,which I don't see many people talk about and for myself ,whilst propanadol helps head tremor ,it does not do anything for the internal tremor ,it feels like having low blood sugar,does anyone else suffer this .


I take Propanadol 60 mg in two doses ,and have added Vitamin B and magnesium,which seem to help the internal tremor ,,but I still have the odd bad day . Someone mentioned Vitamin D  how does this help .I live in New Zealand and get out in the sunshine quite a bit and get a fair bit of Vitamin D .

Smrodgers
Smrodgers
I am new to the group and just read your post. I am not on any medication and have not tried any yet for my ET. I too have an internal tremor. I just assumed that was the norm for ET. My head, hands and arms shake. And just recently my jaw is extremely tense. Like all the time. By the end of the day my body is exhausted.
Boofy
Boofy
Hi Smrodgers

At the moment due to gaining weight around my middle on Propanadol ,as it seems so have many others , am trying to reduce my Propanadol,not take it on days I am not working ,but some days ,the damm internal tremor gets to me, makes me clumsy and doing things requires extra effort, but I have noticed the Propanadol does help and I can feel it kick in and tremor calms to an extent ,some days it doesn't,but generally it does improve .

Some days my voice is effected,I go to speak and either my voice trembles or it appears I can't find the word I want to use , it's not dementia ,just the muscles ,vocal chords not working !!
Totally understand how exhausting it is for you , some days ,I think , I will just have to accept the weight gain around the abdomen ,in that the medication helps ,it's just I no longer fit previous waist bands
Dug
Dug
I just joined this site today. I joined because I don't know anyone with ET and I was amazed when I stumbled onto this site a saw people commenting on things that I have experienced. It seems sometimes like people without ET don't understand what you mean when you talk about them. Your comment on tremors inside really caught my eye. The concept of inside is how I describe them to my wife when she asks how my tremors are doing. At times others can't see my tremors, but they can be raging on the inside. I use to call them my personal earthquakes. They can be exhausting at times.
SoTiredOut
SoTiredOut
I also get this internal tremor, it was what I first noticed way back in my teens before I ever had visible tremors like I do now. I would feel like I was shaking inside, I thought I had low blood sugar or was nervous. But eventually I started to be able to see my hands shaking ever so slightly. When I pointed it out to people some thought I was pretending to make my hands shake :-( It was frustrating! After several years people began to notice my shaking more when I was doing tasks that fatigued my arms and I kept getting asked "are you OK, are you nervous?" All along I had the internal tremor feeling. I began to drop things and that alarmed me. Finally I mentioned it to my new Dr. and got referred to a neurologist who diagnosed essential tremor, and prescribed Primidone.