Esophageal Cancer Support Group
Esophageal cancer is malignancy of the esophagus. There are various subtypes. Esophageal tumors usually lead to dysphagia (difficulty swallowing), pain and other symptoms, and is diagnosed with biopsy. Small and localized tumors are treated with surgery, and advanced tumors are treated with chemotherapy, radiotherapy or combinations.
I feel awful that i dont get on here as often as i should. But in other ways it is good because it means i am busy... I am busy at the preschool everyday and then after school til about 8 i take care of grandkids. they are the light of my life. I would never have met them if it wasnt for getting my life back after EC. It will be 4 years since diagnoses in august so its been 3.5 years now. I have my next scan wednesday. I am at every 4 month checkup and every 8 months for scan. i only have scope done once a year in summer. along with a colonoscopy. so now its time for scanxiety.
I feel great but then i felt great at the time they found the cancer so thats no help. also after everything i have gone through i Hate needles and they can never find my veins so that is the worse part. i think of you all often and pray for us all.
I had never hear of this cancer before i got it and now have 2 people in my home town diagnosed with it. It really is sad. one has passed and one has just finished treatment and now just heard one recently diagnosed in the last couple weeks. keep them in your prayers please. I told them about the sight but think they are just reading and not talking right now. Thanks everyone. I love this sight...Cindy
I feel great but then i felt great at the time they found the cancer so thats no help. also after everything i have gone through i Hate needles and they can never find my veins so that is the worse part. i think of you all often and pray for us all.
I had never hear of this cancer before i got it and now have 2 people in my home town diagnosed with it. It really is sad. one has passed and one has just finished treatment and now just heard one recently diagnosed in the last couple weeks. keep them in your prayers please. I told them about the sight but think they are just reading and not talking right now. Thanks everyone. I love this sight...Cindy
I can so relate to scanxiety - it's usually when I think most about, if the cancer has returned? I just try to make my thoughts change to something positive when it goes there. Other than the swallowing issue, I didn't really have symptoms either. But the one thing we know is the tests are necessary and the best we can do to do our part.
I'll be lifting extra prayers for you. I hate that they have a hard time finding your veins. Do you tell them ahead of time that you are a hard stick? I was told once to tell them in the lab that I was, so I wouldn't have a student. I couldn't remember if I needed to fast for water & I didn't for the test I was having, but I didn't drink any since I couldn't remember. I've heard that makes it harder to find a vein if you haven't had anything to drink for 12 hours or whatever. Not sure if it's true or not. I'd still do whatever they tell me :-)
My best to you with your test results. Brenda
You were one of the first post to me and FireJon. I read it everyday. Along with you we never heard of this cancer and the BEAST it is. Prayers for Wednesdays scan and all the people who are newley Dx with this cancer. When Jon had surgery there were 4 patients on the floor with this Dx. I also told them about this site but I still don't see any postings. Speaking for veins Jon has the same problem. If you remember the Port he had put in before Chemo and Radation never worked so to the veins. Well one of the nurses said when you have Chemo your veins are not the same as before. He had so much trouble in the hospital after trying for 1hr and he said please stop they called a team just for that problem. It took the team 4 tries finally got in. Yes the drinking of water helps but what do you do when you have to fast!
They did a scope on Feb 8th Jon fasted omg what a time to get the vein. Jon has an appointment March 13th to remove the port and follow up visit. Nothing about scans and stuff has been discussed yet. He is doing OK. I try to keep him hydrated. One of the nurses suggested Pedi-lite and it works, goes down well and tast is good.We take one day at a time.
Today 5 weeks post surgery now a Cancer Survivor.
LOVE HUGS AND PRAYERS ALWAYS