Epilepsy & Seizures Support Group
Epilepsy (often referred to as a seizure disorder) is a chronic neurological condition characterized by recurrent unprovoked seizures. It is commonly controlled with medication, although surgical methods are used as well. Seizures (or convulsions) are temporary abnormal electrophysiologic phenomena of the brain, resulting in abnormal synchronization of electrical neuronal...
hi all happy new year and all that jazz!
i am going to skip some of my past history for now, i am on the chronic pain group and the migraine group but i dont want to waste your time with that IF it is'nt relevent. (if it is please ask any question!!!)
so for years i have had what the doctors have wrongly called spasms. i know they are wrong because i know the difference between spasms and whatever these are. they had also never seem them in action.
they usually happen at night. it starts in my right shoulder almost like a growing tension that starts spreading to my chest. next my shoulder starts twitching and this "cold" feeling starts in my chest. then my whole right side starts, i dont know how to describe it, almost slamming itself backward. then both shoulders start jerking, then my back starts bowing. i can feel it into my neck, shoulders, sternum arms. i feel like if i dont move my arm back, or forward, or up, they will explode. this will last 45 minute to an hour. sometimes walking around or even( dont laugh) orgasm, if i can, will help. the next few hours my who;e body will be tense and sore. there is never a loss of conciecness though.
last friday things got worse. it started around 11:30 a.m. i tried to lay down but it started getting really bad around 1;00. my boyfriend came in and tried to give me a hug and i almost bucked him off my back bowed so hard. he took me to the hospital where they treated me for "non-specified seizures" due to stress. (although i havent really been stressed). they gave me hydroxyzine and sent me home with instructions to see my regular doc as soon as i could which is tomorrow.
since then i feel so tired, shaky, weak, i have a loss of co-ordination and concentration which is totally new.
first of all are these seizures?
what do i ask the doctor? he is'nt so good about listening to me, so how do i make him really listen?
any help is appreciated. there may be nothing anyone can do. but thank you all anyway in advance.
god bless to you all
i am going to skip some of my past history for now, i am on the chronic pain group and the migraine group but i dont want to waste your time with that IF it is'nt relevent. (if it is please ask any question!!!)
so for years i have had what the doctors have wrongly called spasms. i know they are wrong because i know the difference between spasms and whatever these are. they had also never seem them in action.
they usually happen at night. it starts in my right shoulder almost like a growing tension that starts spreading to my chest. next my shoulder starts twitching and this "cold" feeling starts in my chest. then my whole right side starts, i dont know how to describe it, almost slamming itself backward. then both shoulders start jerking, then my back starts bowing. i can feel it into my neck, shoulders, sternum arms. i feel like if i dont move my arm back, or forward, or up, they will explode. this will last 45 minute to an hour. sometimes walking around or even( dont laugh) orgasm, if i can, will help. the next few hours my who;e body will be tense and sore. there is never a loss of conciecness though.
last friday things got worse. it started around 11:30 a.m. i tried to lay down but it started getting really bad around 1;00. my boyfriend came in and tried to give me a hug and i almost bucked him off my back bowed so hard. he took me to the hospital where they treated me for "non-specified seizures" due to stress. (although i havent really been stressed). they gave me hydroxyzine and sent me home with instructions to see my regular doc as soon as i could which is tomorrow.
since then i feel so tired, shaky, weak, i have a loss of co-ordination and concentration which is totally new.
first of all are these seizures?
what do i ask the doctor? he is'nt so good about listening to me, so how do i make him really listen?
any help is appreciated. there may be nothing anyone can do. but thank you all anyway in advance.
god bless to you all
And when you go to the doc, i would try and see if your bf could go with you. he saw what happened and he could truely explain it from his eye, and that might make yoru dr listen better. I would also ask to get an EEG, and if he wont tell him to refer you to a neurologist who WILL take this seriously because he clearly doesn't care about his patient because he wont listen to her.
let me know what happens if you get this before you see him,
laura
You Do need to see a Neurologist. He Will "listen"! He Will run the appropriate Tests to Rule out any other possible causes. These tests ain't gonna Hurt. :) Questions for your DR: This site is best:
http://www.nomoreseizures.com/ If you can't print it, Write it Down!
Next Start a Journal! Clik on Recommendations for more Info. Please! :) Write down Everything you have told us. There are sites for Journals, but, again you may prefer written at first. :) Epilepsy.com :)
Seizures can be caused Triggered by Many Things. Even the Foods You Eat! Gluten, Aspartame, additives that your system may be allergic, too. More Homework: :) http://www.2betterhealth.com/Other-Triggers-for-Seizures.html
I give you 'homework' Cuz it would take me All day to type what would take you maybe 10 min to read. :) Knowledge is Power! And it will Help You be your 'Own Advocate'. I agree w/ Laura. Take bf w/ You!
I understand, It may be awhile B4 you get test Results. So, ask more questions. I Mite have More Links. :)
Love Candi
have you ever heard of dystonia? it is a type of movement/seizure disorder and sounds a lot like mine.