Epilepsy & Seizures Support Group
Epilepsy (often referred to as a seizure disorder) is a chronic neurological condition characterized by recurrent unprovoked seizures. It is commonly controlled with medication, although surgical methods are used as well. Seizures (or convulsions) are temporary abnormal electrophysiologic phenomena of the brain, resulting in abnormal synchronization of electrical neuronal...
I was diagnosed with complex partial seizures a few years ago and was put on high dose of zonegran. I used to have a lot of seizures but for the last year not so many. Im writing tonight because they have come back again and part of it well most of it is stress and lack of sleep. Ive allowed myself to get sick also. I had a seizure Saturday night and it was terrifying it felt like I had a storm in my head and all I wanted to do was lay on the couch I was so light headed. Then suddenly I felt warm and like I had to throw up. That was the last thing I remember. When I came out of it I was very anxious and panicky I called my drs office who said go to ER well I wasn't thinking so I called a taxi its kinda a no no between my husband and I to do that. Anyways I got to the ER and they said it was because I was sick running a fever and was dehydrated. They asked when I took my meds I couldn't remember. Normally I write down everything my meds, what I ate what I did that day because I have a horrible time lately remembering stuff and I don't know if it is the medication or the seizures. I have been depressed lately because of this. This is a lot to try to understand and my family doesn't when I come out of a seizure sometimes for even a couple days like tonight my husband told me I wasn't thinking logically and Ive been so exhausted. I told him I didn't go to the laundrymat because the bank wasn't open (our washer broke). I don't carry change. He said go to Walmart write a check over. I told him I didn't want to do that I would go tomorrow. I had a lot to do around the house today. Im taking a college course and I have a test on three chapters tomorrow it has required a lot of focus plus I keep forgetting what Im reading. Especially with nagging lol anyways Im sorry I don't know how to handle seizures just yet. Im really anxious I keep trying to sleep but Im worried about having another one. Im worried they are getting bad again. my husband isn't being very supportive he told me I was acting nuts and crazy. I just feel alone. Does anyone else feel like they have to write stuff down? I feel super OCD lol. maybe I should try to rest.
I find that people that don't have epilepsy can't really understand fully what you are going through and how your brain just doesn't work properly afterwards. It takes time to recover and each one is completely different.
I have had epilepsy for about 10 years now and they have no idea what kind, because they can't catch them on an tests and they happen in my sleep. I find that some, I have memory problems after (like at work, things I know but forget how to do properly), others I am just tired and sore, some my head feels like its in a bubble the next day.
It is a very hard thing to get the people in your life to understand and be patient with you. Maybe suggest your husband coming on here and reading some things that other people have to say, or when he isn't sure about something that is going on with you, he can ask the people on here. The people on here can be a very big help.
I know it is easier said than done, because stress is one of my triggers also, but take a deep breath, because stress is only going to add to the problem.
I find when I can't do anything but think about it, I like to go on Pinterest and search for things like Epilepsy quotes (ie: "It's ok not to be ok) Here is my board if you want to have a look http://www.pinterest.com/aokbc/epilepsy-awareness/
Hope this helped a bit.
Good luck.