Epilepsy & Seizures Support Group
Epilepsy (often referred to as a seizure disorder) is a chronic neurological condition characterized by recurrent unprovoked seizures. It is commonly controlled with medication, although surgical methods are used as well. Seizures (or convulsions) are temporary abnormal electrophysiologic phenomena of the brain, resulting in abnormal synchronization of electrical neuronal...
May seem like a funny way to put it but thats what I feel like.
I am having what I think & others that have seen haapen as "absence seizures".
I am having them more often & they seem to be getting worse some of the time. I have had a eeg & vep tests done but still waiting for results which I get next week. In the meantime it is getting scarier for me.
Today I was sitting in the chair watching tv when I suddenly did not feel well. My back had spasmed right up to my neck & the right side of my body was stiff. I could barely breathe. My eyesight was blurry. I think it lasted for a few minutes & I felt very shaky. When I could focus again
When I stood up I was very shaky & as my right side is my strong side struggled to walk so used my walker. I had already wet myself so too late anyway.
This is about 3 hours later & I have restricted movement of right arm (cant lift it above waist high) & my right leg isnt real good either.
This is a double whammy for me as I have ms & left side is very weak anyway.
I am not game to do too much as feel like crap & so sore too.
Does this sound like it could have been another episode (or what you call them). I couldnt get in to dr's so have an appt with gp tomorrow but not sure if they can do much until neurologist actually diagnosis it.
Thanks for reading.
I am having what I think & others that have seen haapen as "absence seizures".
I am having them more often & they seem to be getting worse some of the time. I have had a eeg & vep tests done but still waiting for results which I get next week. In the meantime it is getting scarier for me.
Today I was sitting in the chair watching tv when I suddenly did not feel well. My back had spasmed right up to my neck & the right side of my body was stiff. I could barely breathe. My eyesight was blurry. I think it lasted for a few minutes & I felt very shaky. When I could focus again
When I stood up I was very shaky & as my right side is my strong side struggled to walk so used my walker. I had already wet myself so too late anyway.
This is about 3 hours later & I have restricted movement of right arm (cant lift it above waist high) & my right leg isnt real good either.
This is a double whammy for me as I have ms & left side is very weak anyway.
I am not game to do too much as feel like crap & so sore too.
Does this sound like it could have been another episode (or what you call them). I couldnt get in to dr's so have an appt with gp tomorrow but not sure if they can do much until neurologist actually diagnosis it.
Thanks for reading.
I have written it all down & see neurologist on Thursday. Last time he tested for it he said eeg didnt show anything so not epilepsy but I will be arguing/standing up for myself more this time as it is happening very often. It is happening at night too, I wake up very stiff & sore & can feel the jerking too. Different to my ms spasms too.
Thanks again
He wouldnt put me on any meds at the moment. has ordered a ct scan, mri & a day eeg scan to get a better reading.
I am confused, on one hand he says he is treating it as epilepsy but wants the tests to show it is. Wont give me any meds for it though so have to live with it for 3 months till I see him again
Now what am I supposed to do? He is a good neuro & thorough but I am so fed up with tests. Feel like my life is taken over by them.
-Dimmie
Then they put a video (old fashioned LOL) on which I watched. There was a button next to me I was meant to press if I had a seizure. Good idea but I dont know till after. I did press it 2 times as I know I "zoned out" as missed parts of movie. Also both times I had lost bladder control too. (had pad on) Felt a bit out of it & vision was blurred so thats what made me think I had one. I hope it does either show that it is seizures or what it is. now I have to wait till september to get the results.
anywho, deffinately could be possible that this is seizures, it sounds similar to what my problems were and now that im on seizure meds.
keep us tuned in!!