I think the best that you can do after a seizure is to get some rest. If you are worried about your seizures, it might help to inform your doctor. He/she could provide help or even increase your dosage until your appointment date. I'm sure your doctor would be concerned and interested that you are uncomfortable right now. I have partial onset seizures and grand mal seizures and I worry about them, too. I usually feel very embarrassed after I have one in front of others.

It's a good idea to let your doctor know about your concerns and fears relating to epilepsy. Good luck and take care.

This sounds like alot to handle. I'm not sure I can offer useful advice, however I have sincere empathy for you. Hang in there, I feel for you and will say a prayer for you.
I completely understand the fear you have. This is a tough one, espically about the concern for public seziures - I can certainly relate. I wish the best for you, and hope it gets better. I wish I could help more. Please have faith and I wish you the best

Hi Megan~
I'm sorry and really understand your concerns. Everyone's responses here are really good especially about letting your doctor know how aware you are that a seizure is either coming on or that you have just had one. My doctor is usually interested in how I feel before and after because I believe that helps him monitor the medication(s) I'm taking.
It goes without question that those of us with epilepsy live with the fear of having a seizure at any time however, this is where you can make a choice for yourself to help yourself. You can choose to let this illness rule your life or you can rule your life. By this I mean you will always have this illness and you will certainly have difficult days but you WILL have more days that are much better once the doctor finds the right combination of meds to control your seizures better. I've been on the same meds for about 10 years and recently they started not helping me so I have to change them. Switching meds is never easy on the body but I already know what that's all about, been through it before and have chosen to tell myself " I will get better, feel better and my days will be better!" Will it mean I may have to make external changes in my routines each day?? Yep, it may mean that but nothing ever really stays the same does it? Staying positive helps me. Depression follows a seizure usually so that is something to be aware of because we can tend to think a bit irrationally which is another reason to speak to your doctor. You may need a low dose of an anti depressant and there's no harm in that. Neurological illnesses have depression with them.
Watching anyone have a seizure is very hard to do and often scary, I agree with you on that one. I have a son who witnessed a very bad one for me but he kept his head and did all the right things and I credit him for truly saving me, Kids are very resilient. I think it's best to be honest with them, train them about your illness and what to do in case something happens just as you would with any other situation and you know what?? That child will feel like a hero if the day ever came that they needed to use that training to help you. Never forget that whatever they do for you comes from the heart and with tremendous love....there's nothing wrong with that. Once you think about that, talk about it too YOU will forget the fear and the irrational thoughts and begin to realize you are still the amazing person you have always been and THAT is how your niece sees you too. I promise.
I have one last suggestion about the lights at events because I have the same issue and it doesn't matter where I am....a carnival, a concert, watching a big deal thing on television with strobe lights or one of my son's productions ( he's a technical director with the Blue Man group) . I wear sunglasses! It helps minimize the lights and sometimes I even close my eyes with the sunglasses and I've never been bothered. Stressing over these things will only make it worse for you~ both things are triggers for a seizure. When driving, I look away from the emergency lights on the road from police cars, ambulances, fire trucks etc all those colors can be triggers too. Everyone is different. If I feel myself becoming anxious I seriously take a deep breath and very slowly exhale with my eyes closed. I repeat this several times and I have actually been able to hold off a seizure this way.
I am not a doctor but I have been employed in the medical profession. The meds we take make us tired on purpose. A seizure absolutely makes us very tired and that is the body's way of bringing it back to normal and maintaining balance ~ we always want that. Be good to yourself and let yourself rest. Your last sentence says it all to me...."my seizures have been out of control". Please call your doctor, be good to yourself and it's OK to say NO to things you may not be able to participate in because you don't feel well. I learned the hard way to ignore (especially family that just doesn't understand this mystifying illness) hurtful comments telling me I never feel well ~ well, it's true! I take one day at a time, breathe and I'm finally thinking of me for a change.....it works! trust me...

Good luck and God Bless~ Please let us know how you are doing...
I'm sorry this is long but I wanted to address all your concerns as best as I could :o}

Janet