I'll put the actual description in the next paragraph, this is just the background, feel free to skip it if you don't feel it's necessary to read it. I started having issues about four years ago. They put me on an antiepileptic medication when I left the hospital and it didn't work. My first neurologist gave me a 24 hour EEG at home. I had a few twitches that I pushed the button for but no actual (what I think may be) seizures. He said that was fine. The EEG came back normal. Based on the EEG results and my preexisting psychiatric history he told me I was having pseudoseizures. I went to a psychiatrist and was put on all kind of medications and that didn't stop them either. After I went off all medication I had them infrequently for about the next three years and didn't see a doctor about it. Then it started again and I went to a different neurologist. He said I have neurological damage, it's not psychological, but he can't figure out what caused the damage. I'm beginning to wonder if maybe I was having seizures and because they were uncontrolled and lasted so long they did permanent damage. I have had a hemiparetic walk for about a year now and use crutches.

I just had one last night. I did my best to pay attention to details so I could report them later. I think stress sets them off (which is part of the reason they told me it's psychological). I was sitting at the kitchen table reading and my right foot cramped up really tight. Then my leg begins to cramp all the way up to my (sorry) butt. The cramping can be anywhere between uncomfortable to horribly painful. It gets stiff enough that it holds my leg up off the floor. I get twitching at the same time but I can't tell if it starts before the cramping. It starts in my foot and goes up my leg, into my shoulder and my arm. Then my head feels fuzzy. When my head feels fuzzy I know it's time to lie down immediately. I hit my head the first time it happened. I get this horrible feeling of terror in my stomach. After my head gets fuzzy I start to twitch more. I can't move. I can't talk. I'm awake but I feel really out of it. I feel like I can't get enough air. When I "wake up" I feel disoriented and sore. I can't use my right leg for a while, it doesn't work. It feels heavy and won't move when I want it to. My fingernails turn blue and go back to normal color after a bit. Even though I know i was awake I can't really remember the whole thing like I should it gets foggy afterward. Sometimes I have another one right after the first and they don't stop, sometime they stop after one.

I did notice something very interesting. About one year ago I started taking Depakote for something else but it seems to have stopped most of my seizure issues. Isn't Depakote used for seizures sometimes? I still have them on occasion though so whatever it is it's not fully under control. It's really scary and I'm not really sure what to do at this point. Does this sound like a seizure? Any kind of help or advice would really be appreciated. Thank you all so much for your help in figuring this out.
((hugs)) Crystal