It IS frustrating and the pain is real. I also hate it when people, even doctors, don't understand or minimize the pain. But your doctor and next surgery sound just right, I have read about those scarce specialists and I would really like to find one, but I don't think there are any in my country. Good luck, let me know how it goes! And hang on in there.

How are you doing now after your surgery? I hope you've found some relief.

PLEASE READ THIS VERY IMPORTANT INFO I CAME ACROSS
Scientist sees a connection between endometriosis and tampon use, orgasm
https://medicine.yale.edu/news/yale-medicine-magazine/scientist-sees-a-connection-between-endometriosis-and-tampon/

Tampons and sex appear to protect women from endometriosis, a painful condition that afflicts about 10 million American women and can cause infertility, according to research by a Yale physician.

The finding came as the result of a study exploring whether sexual behaviors, orgasm, tampon use and douching during menstruation modified the risk of endometriosis. “To our surprise, sexual behavior, orgasm and tampon use during menstruation were found to be less frequent among women with endometriosis compared to controls,” said Harvey J. Kliman, M.D., Ph.D., a research scientist in the Department of Obstetrics and Gynecology and lead author of the study published in the June issue of Gynecological and Obstetric Investigation. “It may be that uterine contractions that are part of the female orgasm induce more effective menstrual-fluid clearance of the uterine cavity, which in turn may facilitate cervical outflow. Further, the use of tampons may be more efficient at the removal of menstrual fluid compared to the use of pads.”

Women with endometriosis have endometrial tissue, which normally grows only in the uterus and is shed during menstruation, growing on the Fallopian tubes, ovaries, other sites in the pelvis or, in rare cases, outside the pelvic area. It is typically found in women who are childless or who have children later in life.

The study has provoked some controversy. “To state that women aren’t getting endo because they’re having sex—when it’s just as likely that they are not having sex because they are experiencing the pain of endo—is jumping to conclusions,” the Endometriosis Association stated on its website. Kliman claims that objections to his conclusions are related to a long-held belief that dioxin in tampons is the real culprit but, he said, “our study refutes this.”

According to Kliman, a backup of menstrual fluid in the pelvic cavity is believed to play a prominent role in the pathogenesis of endometriosis. At the start of his research Kliman held to the conventional wisdom that tampon use, douching and sexual activity, especially with orgasm, at the time of menstruation would heighten the chances of developing endometriosis. Instead, he found that douching did not appear to lessen the risk of endometriosis, but sexual activity, orgasm and tampon use did.

“Our study has an important public health message for women, especially at a time when many women seeking infertility care have endometriosis as their primary diagnosis,” said Kliman. “Our study suggests that tampon use could be one of the strongest protectors against endometriosis.”


https://www.dailymail.co.uk/health/article-6512217/Mistletoe-hold-secret-banishing-endometriosis-scientists-find.html


Could mistletoe hold the answer to combating endometriosis? Scientists find an extract of the seasonal plant can help with symptoms

The plant stopped the multiplying of cells in 24 hours, scientists in Korea found

Mistletoe could hold the secret to banishing women's painful periods, scientists have discovered.

A study shows an extract of the seasonal plant can dampen down symptoms of endometriosis – a painful condition affecting ten per cent of women in the UK and US.

It develops when tissue that normally forms the lining of the womb starts to grow in other parts of the body, such as the ovaries, the pelvis, bowel, bladder – even occasionally the spine, lungs or brain.

Just like womb tissue, it swells and bleeds every month during a woman's period.

As the blood has no way of leaving the body – unlike during menstruation – it this triggers inflammation, pain and a build-up of scar tissue.

Endometriosis can leave women in agony every month and many go undiagnosed for years because they just think they are having painful periods.

Some cases can be treated with anti-inflammatory painkillers, such as ibuprofen, to dampen down the inflammation

The contraceptive pill also helps by suppressing the release of oestrogen, which can promote tissue growth.

But many women with severe forms of the condition end up having surgery to remove abnormal tissue.

Now scientists at the Catholic University of Korea, in Seoul, have found mistletoe extract kills the rogue cells that cause the condition.

They studied 40 women with severe endometriosis, taking tissue samples from each one and exposing them to mistletoe extract in laboratory tests.

The results, in the International Journal of Medical Science, found that after just 24 hours the Xmas accessory favourite stopped endometrial cells from multiplying so easily – reducing the rate at which abnormal tissue grows.

It also appeared to lower levels of a substance called vascular endothelial growth factor, or VEGF.

This is a natural compound released by the body to help the formation of new blood vessels – such as those needed to keep abnormal womb tissue supplied with plenty of oxygen to keep growing.

The results support earlier investigations which showed mistletoe is packed with chemicals that may have potent cancer-fighting properties.

The plant is already used as a herbal remedy for cancer in some parts of the world.

In a report on the findings scientists said: 'Mistletoe can reduce the viability of endometrial cells and is a potential candidate for the treatment of endometriosis.'

Mistletoe is a parasitic evergreen shrub that produces white berries from winter to spring.

The origins of the kissing tradition are unclear but are thought to date back to 1700s.

The Victorians became big fans of puckering up under the plant and one explanation may be that it is seen as a symbol of fertility and life.

The plant, which in the UK usually feeds off apple trees, stays green and bears fruit when most other trees and plants have died off for winter.



My Personnel Journey to Healing


I have been battling Endometriosis for as long as I can remember. I have had 2 major surgeries and was about to have a 3rd when I decided to take matters into my own hands. I researched it and accidentally came across this tea. At this point in my life I decided I had nothing to lose so I tried it. When I went back to the Dr to do another ultrasound before deciding to do yet another surgery, he was amazed at how it had shrunk to almost nothing in a matter of a short time.


To prepare Mistletoe Tea, add 5 gm of finely chopped Mistletoe leaves to 250 ml of cold water and let it stand 12 hours at room temperature. Now it is ready and can be consumed.


I hope this helps.
My name is Fran and this is my email address francam7@gmail.com