To anyone willing to read this..
I was diagnosed with endometriosis February 2018 with emergent exploratory laparoscopic surgery. I was misdiagnosed after being told my right fallopian tube was about to rupture from pelvic Inflammatory Disease... I never had PID.. it was endometriosis.. I have seen 4 different OBGYNs since February and on and off medical leave from work. I am a registered nurse, and dealing with this pain is so frustrating for me. I had one of my OBGYNs RN tell me "I have never heard of someone with endometriosis complain of this much pain." I cried for days over this horrific remark.
I found no relief after the removal of 4 large masses of endometriosis from my cul de sac. Endometriosis was left on my left uterosacral ligament, as well as on the bowel. I have been on different birth controls (nuva ring 2 weeks post laparoscopic surgery, then depo provera, then lupron depo, now back on nuva ring). I seen the most relief in pain with lupron.. however.. being 29 years old and having my ovaries shut down for 6 months, I developed severe bone pain - so I needed to stop lupron. Being on lupron was the best I have felt in a LONG time. However, I finally found a fertility specialist who performs deep removal of the peritoneal lining with removal of all endometriosis (she is not afraid of removing parts of the bowel, appendix, etc) to make sure the endometriosis does not come back for 3-5 years. She is one of 11 surgeons in the US who performs this surgery. Has anyone ever had this before? I am scheduled for surgery again December 11th, 2018.
I am just getting VERY down again, my pain is so intense, nausea, dry heaves, dizzy, etc. Is this normal? My body still isn't back to how it was after Lupron..
I appreciate anyone who reads this, and has any words of encouragement or experience. This disease is absolutely frustrating and wearing me down.
I'd like to tell my story thus far, in hopes someone can offer words of encouragement.I'm a 30 year old mother of one. I noticed after my c-section a few years ago my periods became increasingly painful. I left work to raise my son, and it's a good thing I did. Don't know how I'd be able to function daily not being able to stay at home. A day or two before my cycle I get extremely bloated and...