hoping someone can help me with this... I am 30, I've had endometriosis for at least 15 years, but was only just diagnosed about 5 months ago, without a laparoscopy. When I was diagnosed the doctor said that I without a doubt have endo, simply based on my history of cysts/symptoms/hospitalizations/doctors visits. 

He said that I could go forward with the lap if I wanted to, but then he also said that since I'd already been dealing with it for so long, that I can just continue to do that - deal with it. So, of course being diagnosed so nonchalantly with something that no other doctor over the past 15 years mentioned, like it was no big deal, I decided that just dealing sounded better than surgery.

So I told my doctor my decision to just stick it out, based on all he told me - endometriosis. That's it. He didn't tell me anything about it except quick medical jargon, and that infertility isn't really that big of a worry. 

So I left the doctor that day feeling pleased to know that I had a name to call my pain. But I really had no idea what that meant.

And that brings me to today. 15 years of endo, but I'm really just learning all about it now. I've only done research when I'm having a flare up in the past five months, which has been a lot. My flare ups have been getting more frequent.

I've been able to connect the dots on so many things. Symptoms of endo that I was always so confused about. Vomiting blood, feeling deadly sick after one night of only a few drinks, terrible bowel pain, pain with sex, pain with urination, full body exhaustion. So much more.

Everything I've learned about endo has just been on my own when I'm in pain and all I can do is look at my phone! I even mentioned to my pcp my diagnosis, to which no response. 

I have since discovered that there are four stages of endo, yet when I was diagnosed I wasn't even told that it could get worse and spread. 

Now that I know what I'm dealing with, I am very concerned about the stage of endo that I have. My endo, since my diagnosis oddly enough, has rapidly been seeming to worsen. And the pain seems to spread further. This is a pain that I've been going to the hospital for and dealing with for 15 years, so I know that the endometriosis must be getting worse. It's never been seen or touched for 15 years. And now it's just worse.

I'm in a flare up currently, after just having one week of freedom after my last flare up. It is not just cyclical for me, it's whenever. Always has been.

i wonder about thoracic endometriosis as well. I have chronic costochondritis, but now I'm wondering if it's all related. I'm noticing that I tend to have a wheezing/congestion with my flare ups, and lingering pain seems to be behind or around my ribs. Does anyone have any thoughts on this?

 I'm also concerned about this weird sharp pain I keep getting in my head, in all different areas. Any ideas if this is related?

Today I scheduled my appointment back with that same doctor that diagnosed me, to see him for a surgery consultation. 

My question is, does anyone know if they can see endometriosis everywhere through a laparoscopy? Bowel, thoracic region, etc.

 I'm nervous about all of it. Any help would be loved! This is my first forum-ing