Endometriosis Support Group
Endometriosis is a common medical condition where the tissue lining the uterus is found outside of the uterus, typically affecting other organs in the pelvis. The condition can lead to serious health problems, primarily pain and infertility. A major symptom of endometriosis is pain, mostly in the lower abdomen, lower back, and pelvic area.
Just venting, but I'm sharing with all of you ladies because I know that all of you will get it and have been thro it.
I'm so tired of people ignorant of my endo situation and their stupid questions....(elongated sigh) Well why don't you just take a pain killer? "Um maybe I would if they worked any other bright ideas there Sherlock?" Why is it taking you so long to find and see doctor? Well lets see, I have no health insurance. You try finding a doctor that is willing to work with you with no insurance and then begging for free care and then begging from a loan from a bank for the down payment on a surgery then you tell me whats taking so long huh? Really people I'm not sitting around on my butt being lazy twittling my thumbs here, I'm on the phone, e-mail at the docs etc every day for at least 1-3 hours with this endo mess, its a part time job in itself for petes sake.
I know this sounds awful but I just wish that for one full week these people would have to walk in my shoes and have to deal with all of my struggles with it and then I could annoy them with stupid ignorant questions or say the mean things that they have said to me such as "you got the day off of work you can stop faking now", "The pain can't be that bad", Your just using that as an excuse to get out of (fill in the blank)"
I really want to slap my mom's cousin. She has been in the medical field for eons as an assistant nurse, secretary and now doing some medical coding. She is the one that gives me the most grief about this and not saying this to be mean, but I guess its easy to judge someone when you've never had a major illness, have had health ins handed to you your entire life and never had to be a caregiver to someone.
But anyway, I'm sure you all can relate and thanks so much for letting me vent! Going to go watch spongebob and chow down on some grub. :)
I'm so tired of people ignorant of my endo situation and their stupid questions....(elongated sigh) Well why don't you just take a pain killer? "Um maybe I would if they worked any other bright ideas there Sherlock?" Why is it taking you so long to find and see doctor? Well lets see, I have no health insurance. You try finding a doctor that is willing to work with you with no insurance and then begging for free care and then begging from a loan from a bank for the down payment on a surgery then you tell me whats taking so long huh? Really people I'm not sitting around on my butt being lazy twittling my thumbs here, I'm on the phone, e-mail at the docs etc every day for at least 1-3 hours with this endo mess, its a part time job in itself for petes sake.
I know this sounds awful but I just wish that for one full week these people would have to walk in my shoes and have to deal with all of my struggles with it and then I could annoy them with stupid ignorant questions or say the mean things that they have said to me such as "you got the day off of work you can stop faking now", "The pain can't be that bad", Your just using that as an excuse to get out of (fill in the blank)"
I really want to slap my mom's cousin. She has been in the medical field for eons as an assistant nurse, secretary and now doing some medical coding. She is the one that gives me the most grief about this and not saying this to be mean, but I guess its easy to judge someone when you've never had a major illness, have had health ins handed to you your entire life and never had to be a caregiver to someone.
But anyway, I'm sure you all can relate and thanks so much for letting me vent! Going to go watch spongebob and chow down on some grub. :)
One time I did explain one woman's like, "Oh yea, I totally get it. My periods are a pain, my cramps are pretty bad too." I'm like..."NO, you don't understand. When you have your period do you double over when you shed your insides out? Do you take painkillers just to get through the day? I didn't think so..." I was pretty nasty. So I just don't bother telling anyone.
I have had woman say that too AmericanGirl, "my cramps are just as bad but..." No, no, no, they don't compare so please don't go there.
Like Ash said we should continue to educate these people and hopefully the word on endo will spread, and people will start to actually get that endo is a debilitating and very real condition woman have been struggling with for decades.
We know the frustration and long hours of pain, research, ignorant people, and even more ignorant comments. You are certainly not alone in this.
I worked with a wonderful woman at my last job. I had a hard time when I was first diagnosed with how to talk about it with out sounding like that was "all I talked about." She told me something I found really helpful and I wanted to share, "if you don't tell someone what you are going through no one will know." She went on to say if you had a game leg anyone could see and limp and know something was wrong, but this is internal and you put on a strong face to get through the day so people assume you are ok.
This proved true when I started my new job. I had been really sick (a side from the endo) and finally was feeling better. I was having a problem with a couple girls at work and finally sat down and talked with them, once it came up what I was going through everyday their comment was "I had no clue, you were sick and got better. We just assumed everything was fine with you." It just really hit home what my previous coworker said, no one knows what we go through unless we tell them. I actually explained to them the level of pain I have in the past experienced and what my day to day pain is, it was a real eye opener for them and made them so much more understanding.
good luck
For some I think the stupid questions are just a form of concern. I noticed that yesterday when I contacted a friend. She hurt her knee really badly and has to have surgery. We chatted last night and she seems kind of down as the pain is getting so bad that she has had to take a leave of absence from work, can't drive anywhere, etc. Then I started with the stupid questions, well have you tried this or have you tried that? She was prolly like what's with all the stupid questions? Why would I not have tried all those things? lol
Its the ones that are all matter of fact about it "well if only you had just eaten a quart of strawberries a day then you never would have gotten cancer then" Its those people that bug me.
Thanks all!!! Big Hugs (((((0))))