Endometriosis Support Group
Endometriosis is a common medical condition where the tissue lining the uterus is found outside of the uterus, typically affecting other organs in the pelvis. The condition can lead to serious health problems, primarily pain and infertility. A major symptom of endometriosis is pain, mostly in the lower abdomen, lower back, and pelvic area.
Quick backstory:
My ob/gyn put me on the three month bcp in October. I started bleeding two weeks in, on October 26th. Bleeding was every day. I had my laparoscopy on Feb 4th. I stopped the bcp the night before surgery. After the surgery, I had regular post-surgery bleeding. I had my first depo shot the week after surgery. Continued to bleed.
Today is March 26th, and I have been bleeding since October 26th. That is five months straight. I'm ready to lose my freaking mind. My depo shot won't "wear off" until mid-May.
I go back to see my surgeon in early May. I'm seriously considering stopping all meds altogether. I am NOT interested in getting the Lupron shot. Heard way too many horror stories. I figure, what is the worst that can happen? The endo grows back. I had endo for roughly 15-20 years and didn't know it. Stage 4. My surgeon didn't even know until my surgery. I would almost rather live with the painful periods for seven days each month instead of enduring this constant period and cramps. Its ruining my quality of life. My iron is depleted, I can't have sex, and it is making me crazy. Not to mention my new crazy mood swings from the freaking depo shot.
Has anyone ever had surgery where they removed most (if not all) of the endo and then eventually opted to do nothing to keep it from coming back? I'd really love any advice. When I go back to my surgeon in May, I want to present him with a plan that I am confident in and comfortable with.
My ob/gyn put me on the three month bcp in October. I started bleeding two weeks in, on October 26th. Bleeding was every day. I had my laparoscopy on Feb 4th. I stopped the bcp the night before surgery. After the surgery, I had regular post-surgery bleeding. I had my first depo shot the week after surgery. Continued to bleed.
Today is March 26th, and I have been bleeding since October 26th. That is five months straight. I'm ready to lose my freaking mind. My depo shot won't "wear off" until mid-May.
I go back to see my surgeon in early May. I'm seriously considering stopping all meds altogether. I am NOT interested in getting the Lupron shot. Heard way too many horror stories. I figure, what is the worst that can happen? The endo grows back. I had endo for roughly 15-20 years and didn't know it. Stage 4. My surgeon didn't even know until my surgery. I would almost rather live with the painful periods for seven days each month instead of enduring this constant period and cramps. Its ruining my quality of life. My iron is depleted, I can't have sex, and it is making me crazy. Not to mention my new crazy mood swings from the freaking depo shot.
Has anyone ever had surgery where they removed most (if not all) of the endo and then eventually opted to do nothing to keep it from coming back? I'd really love any advice. When I go back to my surgeon in May, I want to present him with a plan that I am confident in and comfortable with.
Do NOT do lupron. That shit is the devil. Lupron devil. I had two injections and it did nothing for me but give me menopause at 20yearsoldd. Sleeping naked with a fan on in cold november sucks! But i rwally dont recommend it.
Idk what to say about rhe medicine. No medicine has ever worked for me. (Excluding narcotics of course) you know your body best not them. Good luck :)
When I took continuous bcp I bled every day. It really wore me down after awhile and I was sick and tired of wearing pads every day. Aygestin didn't work for me either. I tried an aromatease inhibitor (AI) but that also made me worse and I learned what "iatrogenic" means. I do not recommend aromatease inhibitors! I went from having pain just on my period to having pain every freaking day. And then my doctor prescribed me daily pain meds to counteract the side effects of the aromatease inhibitor. That's when I went - "What the heck am I doing?" How is taking pain meds every single day with the AI better than just taking pain meds for a few days? I chucked out the AI after that and decided not to do anymore hormone therapy.
I've heard from some people that they love their bcp and it worked great for them. Makes me so jealous! lol BCP did zip for me.
Good luck to you! And I hope you and your doctor figure out some kind of plan for your pain.
So i decided to do something further about it. Seeing that cysts are also an estrogen issue, i went to an herbalist. i got on a buttload of herbs, 2 for hormone issues and it's only been a month but i see a difference in how i feel... like my hormones are feeling more balanced. Too early to know for sure how much it's really helping but i'm optimistic! It's not for everyone but i'm feeling good with how i feel already. Time will tell.