I have severe endo with many large endomitriomas and while the surgical board is reviewing my case at my hospital in Boston, the doctor started me on Lupron today. I will receive the injection monthly until a decision is made whether my surgery will be a full hysterectomy or just removal of what they can and a biopsy. They need to rule out cancer, and of course that makes me so nervous, because my cysts ane endo came out and progressed to a very severe case within 6 months. THey are assuming its endo because monthly ultrasounds and symptoms ect are text book , so they told me. I know I am now in medically induced menapause, and not sure what to expect from the lupron. My last period that just ended was so severe and the pain so bad I was hospitalized after the period was over because the pain has not stopped at all for pain management, now I am happy to be home, taking dilautid for pain until the lupron hopefully helps. I would appreciate any advice, experience with the drug, any sharing is so appreciated. its all new to me and I have Lupus ,Sjogrens and a few other autoimmune diseases, so this came out of no where for me and I am overwhelmed. I know the bone loss is a big issue for me because I have been on steroids for almost 4 years now and will be most likely forever, at a small dose, . I look forward to any advice on what to expect, should I have a hyster ect. My ovaries will not be able to be saved because they are completely encased in endomitriomas, they cant be seen at all in ultrasound, so I was told if I go ahead with surgery, the ovaries will have to be removed too.
thank you all Big Hugs
thank you all Big Hugs
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