Endometriosis Support Group
Endometriosis is a common medical condition where the tissue lining the uterus is found outside of the uterus, typically affecting other organs in the pelvis. The condition can lead to serious health problems, primarily pain and infertility. A major symptom of endometriosis is pain, mostly in the lower abdomen, lower back, and pelvic area.
I have severe endo with many large endomitriomas and while the surgical board is reviewing my case at my hospital in Boston, the doctor started me on Lupron today. I will receive the injection monthly until a decision is made whether my surgery will be a full hysterectomy or just removal of what they can and a biopsy. They need to rule out cancer, and of course that makes me so nervous, because my cysts ane endo came out and progressed to a very severe case within 6 months. THey are assuming its endo because monthly ultrasounds and symptoms ect are text book , so they told me. I know I am now in medically induced menapause, and not sure what to expect from the lupron. My last period that just ended was so severe and the pain so bad I was hospitalized after the period was over because the pain has not stopped at all for pain management, now I am happy to be home, taking dilautid for pain until the lupron hopefully helps. I would appreciate any advice, experience with the drug, any sharing is so appreciated. its all new to me and I have Lupus ,Sjogrens and a few other autoimmune diseases, so this came out of no where for me and I am overwhelmed. I know the bone loss is a big issue for me because I have been on steroids for almost 4 years now and will be most likely forever, at a small dose, . I look forward to any advice on what to expect, should I have a hyster ect. My ovaries will not be able to be saved because they are completely encased in endomitriomas, they cant be seen at all in ultrasound, so I was told if I go ahead with surgery, the ovaries will have to be removed too.
thank you all Big Hugs
thank you all Big Hugs
i have also just started lupron my first injections was two weeks ago. i do have endometriosis but its on my right lung which is very strange as well as been life changing i had a few different meds given to me and nothing worked so i hope this does because i have a mass of endo tissue on the right lung and may need part of my right lung removed but they are trying this to see if the lupron shrinks the endo on the lung , so now i am lupron to shut the ovaries down so my body does not produces estrogen because that feeds into the endo. so far i have only had one symptom due to the inducing of menopause from the lupron injections and the symptoms is hot flashes. and they are sever like a huge wave of heat and instant sweating. i was told that i will start to feel more menopausal symptoms with the next injections such as not being able to sleep, mood swings, irritable and night sweats. i have also had really bad pelvic cramping which i don't ever get since my endo is on the lung but i'm not sure if thats a symptom from the lupron or not. id like to know how your doing on it? symptoms, and since you just started knowing how your doing on it and possibly compare notes and share our experience on the lupron to help each other. i am only 21 and plan to have children so being put into menopause is quite scary but they say that once i stop the lupron my ovaries will start functioning properly once again and i will be able to have children so i hope that's an option. So hopefully some of this helped or at least made you feel and know your not alone in this. i would love to keep each other updated on how we are responding to lupron. i wish you all the best and i hope this helps you...despite the awful symptoms from being in menopause. although its better then the alternative of having major problems due to endo. good luck*
Take care*
I was on lupron two different times. Both times the first three months were fabulous!!! The best I have ever felt with endo. But the 2nd 3 months (I did 2 3month shots) were horrible....worse pain than I had before. But I still think it was very worth being on...just for thosefew months of good feelings!. I had hot flashes and mood swings.
Mary, just know that endo CANNOT be diangosed thru ultrasound. It can be suspected but the only way it can be 100% diagnosed is thru surgery.
I was on lupron for 13 months, and the first month of starting a series was extremely painful, a lot of bleeding and cramping, then after the first month I felt a lot better. They don't want me to be on it anymore because of the possible bone loss after being on it this long. I had my last one month shot 9/3/09, and will not be getting anymore. I got the Mirena IUD to hope that will help, and I am cramping really bad with that and may have to get it out, has anyone ever had the IUD and a lot of pain? Oh yeah, I also took add-back therapy to decrease the bone loss and side effects, so I only had a few night sweats. Hope that helps!
Laura