Endometriosis Support Group
Endometriosis is a common medical condition where the tissue lining the uterus is found outside of the uterus, typically affecting other organs in the pelvis. The condition can lead to serious health problems, primarily pain and infertility. A major symptom of endometriosis is pain, mostly in the lower abdomen, lower back, and pelvic area.
I had my appointment with a specialist ( endo and pelvic pain ) this last Tuesday and I have to say ( knock on wood ) there is light at the end of the tunnel!!
Here is what I found out: During the physical examination he immediately found endo on my cervix. ( Less than 2 months ago I received an exam from my gyno ( 3rd one ) and it was not discovered. Hmmm....) The specialist also said that ALL of my muscles "down there" are extremely tight. He also suspects adenomyosis. Cautiously he told me, ( as to not speak ill of other doctors which says to me he is VERY professional! ) but not in so many words, that my 1st gyno who diagnosed me had no business removing any endo. Also he is NOT convinced that the IC diagnoses is correct seeing how it wasn't done by a urologist or a gyno that specializes in the bladder.
All of this makes total sense to me and explains alot of my pain! He was shocked and impressed that I had to seek him out on my own. He feels I shouldn't have been battling this for so long on my own but that I had the good sense not to listen to these doctors and receive a hysterectomy KNOWING that a hysterectomy isn't the answer for me.
This is by no means the end, this is a new beginning. A new beginning with a plan of attack that I should have been doing all along. He will start me out with the Mirena IUD and continue me with physical therapy and then go from there. Once we get the endo pain under some sort of control, he can look further as he feels there is MUCH more going on!
Thank you for reading! I will continue to post my progress!
Stay Gold!
Here is what I found out: During the physical examination he immediately found endo on my cervix. ( Less than 2 months ago I received an exam from my gyno ( 3rd one ) and it was not discovered. Hmmm....) The specialist also said that ALL of my muscles "down there" are extremely tight. He also suspects adenomyosis. Cautiously he told me, ( as to not speak ill of other doctors which says to me he is VERY professional! ) but not in so many words, that my 1st gyno who diagnosed me had no business removing any endo. Also he is NOT convinced that the IC diagnoses is correct seeing how it wasn't done by a urologist or a gyno that specializes in the bladder.
All of this makes total sense to me and explains alot of my pain! He was shocked and impressed that I had to seek him out on my own. He feels I shouldn't have been battling this for so long on my own but that I had the good sense not to listen to these doctors and receive a hysterectomy KNOWING that a hysterectomy isn't the answer for me.
This is by no means the end, this is a new beginning. A new beginning with a plan of attack that I should have been doing all along. He will start me out with the Mirena IUD and continue me with physical therapy and then go from there. Once we get the endo pain under some sort of control, he can look further as he feels there is MUCH more going on!
Thank you for reading! I will continue to post my progress!
Stay Gold!
The physio stuff really does help... it amazes me just how common it seems to be that we are all so "tight" there - adding to our pain!! And it is just not picked up! They found mine after I birthed my daughter naturally and still had pelvic floor muscles that were too toned... but the therapy was going really well until I fell pregnant again! I will be going back once this baby is born. It can get a little embarrassing, but the results are sooo worth it! xx
finally a doctor whos going to take control of your endo. i do believe doctors push hysterectomies and getting pregnant as a "cure" for endo. you know whats right for you. its weird that they can "feel" the endo. my ob/gyn felt my endo when doing a pelvic i was very suprised since i got surgery to remove the endo 6 months prior and it wasnt in that location.
anyways its good to hear your doing great and you found a good doctor. stay amazing hun!!!!
sabrina
My PT told me that gynos have no clue how to "handle" us down their, that all they are basically taught is how to just "get it out of the way" to get to where they need to. A physical exam from a PT is a WAY different experience than with a doctor.
I have a new list of questions for my doctors. I will see the specialist again March 4th, I will try and get my answers.