I also get rectal pain, and I know it seriously sucks! So sorry you are having issues with that. I don't really have any suggestions for you though as my pain comes and goes (which really sucks because it comes on at the worst times) and since it is so intermittent I don't take anything for it since I figure it won't help anyways (but I do use a heating pad as well, and this helps). What I will say though, since getting on medication for the endo (mine like yours is stage 4) I take aygestin (synthetic progesterone) baclofen (antispasmodic, which helps the pain and chronic diarrhea) and nortriptyline (for pain and chronic diarrhea) things haven't been as bad. I can't tell which med is doing what, but I am assuming the baclofen has helped with it since mine was like an awful spasm like pain (x10, lol).
Also have you tried miralax, it is suppose to be pretty easy on the GI and not cause cramping. I have a friend who has horrible constipation (not from endo, she has IBS, gastro paresis and maybe something else). She use to go up to 2 weeks with out going and she says as long as she takes the mirilax daily she is good and it doesn't cause her cramping.
Hope you feel better soon!

I'm so sorry you have to endure this. Even though I don't get periods due to the BC, I do remember having rectal pain while having a period. That, along with the cramps and unable to walk, I know your pain. It did make it better to going number 2 though. I do have IBS along with Endo, but Miralax does help. I hope you feel better!!

I also take the pill to treat my endo but when I was having periods, I had rectal pain. Most of my endo is rectal in location between my rectum and vagina. The large mass of it shows up on MRI which endo normally doesn't show on those types of imaging systems. I didn't have the rectal pain when I wasn't bleeding but when I was, the only thing that would help was sitting in a warm bath. since I have been back on the pill after trying unsuccessfully for a baby, I have no further pain issues. Rectal pain is horrible. I truly sympathlze with you!
I do have IBS as well but since giving up wheat/gluten, anything with soy and most dairy, I don't get upset stomachs anymore either. Sometimes food can really mess up our innards even more so.

Oh, no! That really sucks. Are you consuming enough fiber and water to help with the constipation? Not to be gross, but if I slack off even slightly on my fiber, I wind up with anal fissures that are just no fun at all and take forever to heal (the most recent was six months). I realize that your pain is probably from a more endometriosis cause, but preventing the constipation might help it to hurt less when you go.

At this point, I take 6 grams of fiber via fiber capsules, eat a ton of fruit and veg, and drink about a gallon of water every day. If I slack off at all with my fiber intake, I pay for it.

I hope this eases up soon for you.

I get severe rectal pain too. I'm never constipated but it feels as though I'm passing an elephant even when it's the smallest bowel movement. I've found that keeping my feet elevated (I put them on the side of the tub, small bathroom) really helps. Sure I look funny but it helps with the pain.

I too am plagued with rectal pain and constipation. It just started a few months ago when I had a horrible flare up, so I am not sure if that means it is spreading or what, but it seems to be more common than I thought. Hope you find some relief!

Hi All,

I had a large mass of endo sitting "atop" my rectal/vaginal canal STILL following 2 lap surgeries to remove uterus, right tube and right ovary. Although as much endo as possible was cut away, and "consumed" organs "released", the severe pain in my vagina and rectum is still frequently breath-taking. It feels as though I'm being "penetrated and/or "violated" with a serrated edge bread knife =( I curl up in the floor with a lidocaine suppository in both vagina and rectum to "deaden" the pain.

As for constipation/bowel movements...constipation is a constant companion. I would recommend a "softener" as in Senokote, Perdiem....most recently I'm using Miralax. My gastr recently recommended Linzess following my colonoscopy. It worked much like Miralax in that it draws water into your stool, keeping it soft and moving.

I FEEL YOUR PAIN...especially kDeezy...finding humor where there is none. I will go for days...sometimes 9...without BM. I have intense bloating, cramping and pressure. It will feel as though I've passed a bowling ball wrapped in barbwire, only to find perhaps a Junior Mint -size poop in the toilet (if I've had success at all)

God help me...I wish I had better, more encouraging answers for all of you, but this is ONE WICKED DISEASE, as you know. Another poster mentioned "fissures inside her rectum". I've had those, too. Just when you think you can't take any more...Mr. Fissure shows up to add his 2 cents.

I also have this pain and I eat a lot of salad and Qunioa which helps.

If you are not familiar as to what is Qunioa, check out the link below:

http://vegetarian.about.com/od/glossary/g/whatisquinoa.htm

Hope this helps.

I bleed occasionally, and yes, I have shooting pains mostly during my period, but today I'm completely constipated and it hurts like HELL I totally empathize and hope you feel better soon!

I can completely relate! My rectal pain is often 20x worse than the cramping I get from endo. After my lap in June 2012, the pain was greatly diminished, but in the past couple months it has been back full force. It comes in waves for days at a time. Like I will be fine for 3-4 days then in agony for 3 days. I like the heating pad idea, and will definitely try that. I also take a product called "Greens" which is basically a powder of 38 super foods that I put in my morning smoothie every morning. I believe this has helped tremendously, at least with regularity and not allowing me to get as backed up as I did in the past. When I see a specialist next month, I am planning on talking about some alternative ways to help. Maybe you should talk to your doc again? Sorry you're in pain :(

Again, thought I was the only one with this. I have constipation, so I religiously take a vegetable laxative. Also having sciatica, the last thing I need to do is push.

Like JenC says, it feels like a lot more than what actually comes out. Anybody get throbbing in the rectal area? I find that so bizarre! Just feels...weird.

My back and lower abdomen severly cramps up before I have a BM. Is that IBS or could it be from endo as well? Anybody else have experience with that?

MN I also get crampy and get back pain before a BM. I feel like when anything is in my rectum, regardless of size, it just sets off a chain reaction of shooting pains and inflammation. It hurts a lot to go and a lot immediately after and then it kind of gently subsides away until the next time.

Also when I'm on my period I literally sit on the toilet sobbing and sweating and relaxing as much as I can to get things moving. To bear down isn't even a possibility. It hurts so badly that my body physically won't let me.

Mngirl,
it could definitly be the endo causing your cramping. I also have horrble cramping before a bm along with a lot of pressure/pain. Sometimes the paih is so bad I can't even walk upright to the bathroom...*sigh* I also get throbbing in the rectal area.
I was told by 3 different drs that I have ibs, but I disagreed. I found better drs and turns out it is my endo causing my intestines to be inflammed and irritated likely by adhesions.

kDeezy and ValleyWillis, okiedokie, another thing to put on my endo "resume" for the doc on Friday. I had two pages worth of symptoms. I put down anything that I deemed necessary/important. Kind of depressing though...2 pages...in Word. Ugg!

Thank you both for letting me know that it's most likely the endo. I had thought that too after reading a few other posts on here about this. Also the sciatic pain, going to mention that too because it only flares up when I'm bleeding either period or who know what else it is. Thank you ladies!