Endometriosis Support Group
Endometriosis is a common medical condition where the tissue lining the uterus is found outside of the uterus, typically affecting other organs in the pelvis. The condition can lead to serious health problems, primarily pain and infertility. A major symptom of endometriosis is pain, mostly in the lower abdomen, lower back, and pelvic area.
That said, it was a long, tough process. It was frustrating for me because it took so long, but it was SO worth it. On my first visit with my doctor she put this thing (sort of like a dilator) up there and it measured the tone of my pelvic floor. It showed that my pelvic floor tone was through the roof and in a constant spasm! She started me on 10 mg of valium vaginal suppositories once daily. I had to take them every night for 6 months, and for the next six months it tapered to 5 times a week, 3 times a week, and then as needed. Dealing with teh valium was a little tough for me because even though I took it before bed I was pretty groggy, however I was in school full time and I did well, it was just weird not feeling energized even when drinking a lot of caffeine lol. I also had pelvic floor physical therapy once a week for a few months, which tapered into every other week, every four weeks, and as needed.
One of the hardest things to deal with is occasional regression. Here and there it would flare up pretty bad again which would mean increased visits to the PT and increase in valium dosage (if it was at a point where I wasn't taking it every day). When things flared up on my full dosage of valium and weekly PT I would go into the office and get injections IN my pelvic floor. That was pretty painful, but having the medication injected directly into the muscle did do the trick when the soreness from the needles calmed down.
Sex is a struggle during therapy, but that too gets better with time and diligence. My PT gave me exercises and stretches and I still do them daily to prevent issues, as she recommended. I was also prescribed a pain reliever, antispasmodics and other medications to prevent excessive urination (the high tone in my pelvic floor combined with interstitial cystitis had me peeing constantly!). I had to have check-ups on my tone once a month for almost a year, but in the end it was a small price to pay for the long term relief I have now! My PT only sees me as needed now, valium is only for flares, and I only have to go to the doctor for it once a year for a check-up unless I have a problem.
If you have any questions, let me know. Good luck!