Endometriosis Support Group
Endometriosis is a common medical condition where the tissue lining the uterus is found outside of the uterus, typically affecting other organs in the pelvis. The condition can lead to serious health problems, primarily pain and infertility. A major symptom of endometriosis is pain, mostly in the lower abdomen, lower back, and pelvic area.
I get that pain sometimes. Sometimes the pain is small sometimes it's great. I have never had pain in that area that makes me double over though. But rather sharp pains on my cervix. Those are crippling and they happen every month. They are so bad that I can't sit, stand or move. They come from out of nowhere too which makes them a little edgy. I have to stop everything and hope I don't look like a weirdo just in limbo. I have never gone to the ER for them, but have mentioned the problems way in the past. But they always said nothing was wrong, their just bad cramps. OTC meds take too long to work, because the onset is so sudden, I didn't have time to prepare. I haven't mentioned it to my new gyne either because I'm just used to dealing with it. You need to get that checked out if you're feeling pain there. Please keep us posted on that. Feel better.
I have ruptured cysts every few months...it hurts bad...I usually go to my ob/gun and have an ultrasound to confirm...but ts obvious to me when i have a cyst ruptures. My symptoms are; extreme bloating, on right side where cyst ruptures, you can actually see a bump...then it feels like your ovary explodes, and I can't move for days... A throbbing, stabbing continuous pain...i dont to hospital, bc I hate it and know there's nothing they can do...I used to go next day to on/gyn to have it checked...but now I know exactly why it feel like so I lay in bed with meds for a few days. But you should have your doc look...just to be safe. But overall, it's excruciating! Doc almost took my right ovary, and I wish he did bc of all of he ruptured cysts. Feel better...o to docs
Be careful w the heating pad...I know it feels good but when a cyst ruptures, or you have endo pain, it causes a lot of inflammation. Heat makes the inflammation worse...I used to use heating pads for endo and cysts pain etc but my husband who is a very versed personal trainer told me not to bc of the inflammation. He tells me to use ice, but I can't...ive had so many injuries due to sports when I was younger, and for all the broken bones and torn ligaments, I remember the doc had me use ice bc of inflammation. I know it feel good....the heat, but keep in mind it may cause even more inflammation; hence more pain! Hope you don't mind my advice... Obvioulsly you know what's best for you. Anyway, hope you feel well!
thanks for the info. I welcome any info that can help me.
When I was 15, I had a large ovarian cyst; one day I was working and I got this throbbing pain on my right side...I wanted to gut it out-even that young, so I drank some ginger ale for the nausea, and tumbs...I didn;t know what I was doing, I was a kid! Well, so quickly, the pain moved and now indundated my whole center pelivis/right side; and under my belly, than I started violently throwing up at my job....I got home, fever was 102 plus. Went to ER at some point that night, i was forced, fever was 104, they wanted to rule out the cyst, and while I was puking my guts out, and delusional from the fever, they jammed an ultrasound in me me to check my cyst, while I was puking in the little kidney shaped puke cup they give you-why is it so small?Anyway, to finally finish my lomg winded story;it was my appendix. It was horrible...I've come to find out many years after the appendectomy, it ruptured from the endo inundating it. It was horrible. when I had surgery years later, there was endo all over where my appendix use to be and basically everywhere else-the pictures made me cry to see what is going on inside of me..but it did validate my pain to family who passively didn't believe me, and I guess a little to myself. I mean it was everywhere!
Also, on my last b-day, my 30th, I had noticed for the whole week, I was so bloated I looked 3 plus months pregnant, and it was as hard as a rock, not like fat, but I've had that so many times, I ignored it as much as i could....Well, Im sitting on our couch with my hubby and suddenly pop! not literal a sound, but I knew the pain all too well and feeling... I went right into our bedroom, took my strongest pain killers, and layed down..had my carvel ice cream cake in bed, and opened my gifts in bed; how pathetic-sometimes I feel like an old lady! I don't know how I got myself together to go out for my bday with my husband the next night... probably the was a mix of the strong pain meds and staying on top of them-they wake me up! and getting into a really cool restaurant called the 21 club in NYC...Im not pretentious or anything, I just love NYC, and I did want to celebrate my 30th. I had a new dress, my hair/makeup done and I was just so excited just gutted it out. Thank God/ or science for Strong Pain Meds! I limped around, as we ate at, then took a cab to little italy...I didn't have to walk much because for the occassion we had a car so I would just sit; it was still fun but so compromised by the pain/meds etc...
Anyway, I obviously have a ton of ruptured cyst stories- They're horrible! The drs dont understand what to do because being on the pill doesnt stop this. Sometimes, i wanna give it all up and have a full hysterectomy; oopherectomy, take everything out...but Ive been adviced against it by too many drs because they say, being at stage IV, theres a strong likliehood of not helping a lot of the pain, and Ive even heard/seen on this forum of endo specialists, that endo can absolutely return after hysterectomy and/or menopause! it just doesnt look at ugly because it doesnt bleed! Will they ever find anything?
Unfortunately, py period pain last 7-9 days, longer than the ruptured cyst pain 3-4 days-depending. They are both extreme, cause me to get ill, and fevers, nausea...id say usually the pain is comparaple, becaue the endo pain is so severe... but it does feel different. Endo pain with my period, feels like my stomach is bleeding, like I have cuts all over it, and I have to run to the bathroom both ways, and I dont go...and when I do, its agony, and it gets worse! I can barely pee! I get migrained everytime... I won;t go into every symptom. This is a tough road we're on. And a long one. '
Sorry for such a long post, I just have so much to say about this "ruptured cyst business"; and I'lll admit wanted to vent a bit.
I hope both Sandypops/whyme feel better really soon! Take it easy. I know how much pain your in, and how it takes a horrible toll on us mentally. So take care! xoxo