Endometriosis Support Group
Endometriosis is a common medical condition where the tissue lining the uterus is found outside of the uterus, typically affecting other organs in the pelvis. The condition can lead to serious health problems, primarily pain and infertility. A major symptom of endometriosis is pain, mostly in the lower abdomen, lower back, and pelvic area.
I tried to do a search to see if anyone asked this or has had this, but didn't really find an answer.
I started my period yesterday (Sunday, Aug.30)and I started having pain on Wed night. (more than usual) I kind of felt something sort of "pop" in my left groin area and all of the sudden I felt a "ribbon" of pain shoot down my leg and circle half way around my knee. I had a hard time walking the next day, maybe I was just favoring it. ( I have had a "limp" in my walk for some time from the endo. Many problems with pain on my left side) But then by Friday night, the same kind of pain started on my right groin area all the way down to my little toe. Now, I can trace the "ribbon" of pain, it is not all over, it seems to be in the lymph node area. It almost feels like a consentrated "body ache", you know like when you get them with the flu? That is the best way I can describe it. Sitting, going to the bathroom, wearing snug clothing, touching it will make it worse, sort of like body aches with the flu. It hurts to move.
I have this on top of all the other symptoms I have and it being 3x worse with my period.
What I am wondering is that I have learned here that endo. can affect the immune system, is that what is happening with me? I have been feeling very drained these last few weeks, not "sick" just can't seem to get enough sleep.
Has anyone else felt like this?
I will be seeing my gyno soon for the start of Lupron, should I just tell him?
Any input would calm me.
My anxiety is very high today and a bit emotional so bear with me.
My husband has already had to witness me crying for no reason today and I can't imagine what it will be like on Lupron!
Help!
I started my period yesterday (Sunday, Aug.30)and I started having pain on Wed night. (more than usual) I kind of felt something sort of "pop" in my left groin area and all of the sudden I felt a "ribbon" of pain shoot down my leg and circle half way around my knee. I had a hard time walking the next day, maybe I was just favoring it. ( I have had a "limp" in my walk for some time from the endo. Many problems with pain on my left side) But then by Friday night, the same kind of pain started on my right groin area all the way down to my little toe. Now, I can trace the "ribbon" of pain, it is not all over, it seems to be in the lymph node area. It almost feels like a consentrated "body ache", you know like when you get them with the flu? That is the best way I can describe it. Sitting, going to the bathroom, wearing snug clothing, touching it will make it worse, sort of like body aches with the flu. It hurts to move.
I have this on top of all the other symptoms I have and it being 3x worse with my period.
What I am wondering is that I have learned here that endo. can affect the immune system, is that what is happening with me? I have been feeling very drained these last few weeks, not "sick" just can't seem to get enough sleep.
Has anyone else felt like this?
I will be seeing my gyno soon for the start of Lupron, should I just tell him?
Any input would calm me.
My anxiety is very high today and a bit emotional so bear with me.
My husband has already had to witness me crying for no reason today and I can't imagine what it will be like on Lupron!
Help!
i feel things on a daily basis that is not listed in text books for endo. i constantly feel fluish and clammy and i just ache all over and havesensations of numbness, rawness, burning... twinges, jabs, tickles etc.
it literally drags my body down so to speak and my arms get weak and i start to sweat and get pins and needles feeling on head and all over. also cold chills that rush out like an electric shock... down my legs.. up my back and head etc. my scalp also cramps up.
i hope that has helped :-/
could be affecting ligaments, could be from inflimation affecting these ligaments joints, tissue and muscle too. its all connected
I also have severe sciatica from low back pain from endo. It sounds like (if the pain goes down the back at all) this could be it. See a doctor and do not let them tell you it is normal (if your cramps are bad enough to cause severe leg pain or sciatica, you need relief, be it from surgery or whatever).
I can say I had a neurectomy to stop cramps (where they sever a nerve during a lap) and it stopped my leg pains (other than the sciatica).
But randomly, not really in relation to the endo pain... and it was just always there from when I can remember.
I have just found out that I have pubic symphasis dysfunction and that is the cause!
And guess what?? Chiro (though excruciating to get put back in) helps so much! I can feel when it is back out, and three treatments into it I am heaps improved!!!! (Less painful, longer breaks before needing to get adjusted, less pain getting it adjusted) if this is what is happening to you, that "sticking" feeling like you have something stuck in you preventing you from moving will just disappear once you have been put back into place!!
It is also likely the reason I carried so low with the pregnancy and had so many problems in relation to this, so well worth getting checked. Wish I could of had this level of relief years ago from something that has been adding to the endo pain! Best of luck :)