I have been questioned if I was Bipolar because all my tests came back negative (I'm a mental health counselor so I found that funny). I finally found the CEC! I just had surgery there. They are a dream!!! Go to their website www.centerforendo.com. I have heard the docs at the CEC think Lupron should be pulled off the market & they believe in properly excising the Endo from the organs & not removing them unless absolutely medically necessary! There is an article on their website about bowel endo. There is also a questionnaire regarding bowel symptoms you can fill out and send to them along with your records for review (for free). The doc himself will call you to discuss your options! Good luck! Oh, the first thing the doc said was, "you are not crazy, you still have endo." It was nice to hear.

I feel the exact same way.....I am sure my docs just think I am making this stuff up! I have been fighting this for over 15 years and they may be right now, as I feel I am losing my mind. I also think my endo must be 'buried' in an organ somewhere as my last lap came back clear. I also cannot convince a doc to give me a hysterectomy - despite the horrid episodes I suffer through when I get my period. Save me a spot in the psyche ward, I am right behind you.

My doctor has agreed to give me a hyste so I'm breathing a sigh of relief. Of course now all the doubt is starting to creep in. Not sure if I have this surgery and my doc's not a specialist if I'll end up having even more surgery. Anyway, I'll keep you posted.

please dont do Lupron, it is only temp. results and an have permanent damage.
When was you last lap and what were the results? I had a hyst and endo came back, i now have chronic pain and go to a pain doc, they actually believe me! Take care.
K

Please reconsider a hysto and go to a endo specialist like Lindsay suggested or someone else in your area who DOES know that a hysto will NOT cure endo! My surgeon is the best here where I live and he will not do hysterectomy to "cure" endo. He said that it won't work. I REFUSE to take Lupron or any other hormone treatment b/c for me, it just made me worse. I wasn't able to do anything! I am sending you hugs and hope you find the right help. Don't give up! I KNOW there have been MANY Dr's who think I was looney...but I didn't give up and eventually they found what was wrong. Of course, the Dr's who didn't get it even when proved wrong...kept on being jerks. Some are beyond compassion and I sometimes wonder if THEY are the ones that are nuts! ;-)

My heart goes out to you! It's frustrating to have pain and not have a supportive doctor. Best wishes if you try the endo center. From what I've read here, and the fact that a friend from Indiana drives there for her checkups/surgeries/etc. I think that's the place to go.

This is a long shot...but...I have pain where you are describing, but on the right side. My GYN thinks that it is due to a fragmented round ligament. The ligament can get fragmented from endo. He said that he only repairs about two of these per year, but that it can happen. This is the ligament in your pelvic bone area that holds your uterus, bladder, intestines, colon in place. If mine has fragmented on the right causing pain, yours could have fragmented on the left. Just a thought...

My symptoms are tough bowel movements, feeling of fullness "down low" all the time. Organs can prolapse too causing these types of symptoms. I wonder if they prolapse due to issues with the ligament??

Anyway, just thought I would add this as I had never heard of such a thing until it happened to me. I have surgery on October 29th to fix this and to remove any endo. It'll be interesting to find out if this happened due to endo.

I'm curious how your doctor came to determine it was a ligament issue? That wouldn't show up on a CT scan I guess. I'm just praying the right doctors will be around in case there's something my doctor doesn't know how to fix. The thought of another surgery after the hyste is more than I can even think about.

Now that I think about it, there's been this "cracking" between my pubic bone for a few years. Not all the time, but occasionally. It never really hurt, but now I wonder if it's related to what I'm going through now.

Also, do you get these throbbing pains in your rectum (or is you your anus?) Not to be crude, but sometimes my butthole just throbs with slight pain when I'm just sitting around. My BMs aren't painful as far as the passage of fecal matter, but sometimes it feels like I'm not done or I might have to strain to even get out a loose stool. (can't believe I'm typing this to complete strangers!)

What can I ask my doctor to check to see if it's a ligament? Any advice would be much appreciated.

My heart goes out to you. I was treated like it was all in my head,too. I feel for you and wish you luck w/ whatever you decide.

My doctor came to the conclusion that it was an issue with my round ligament through a thorough physical exam. He did a pelvic and during that had me sit up. He was checking for prolapsed organs. After that, I got dressed, then he put his fingers right on the crease between my "special spot" and my thigh. He then had me sit down, then stand up. He was able to find just one spot that hurt worse! I was able to find that as well. That's how he determined that it was most likely my round ligament. He said that he does only two surgeries a year to fix the round ligament. He told me that damage can occur to this after having the uterus removed. He also thinks that endo could be causing the issue in my case. Yes, my bottom hurts as well and I have had problems with bowel movements. I did some checking on webmd.com about the round ligament and everything I found relates to prolapsed organs. What you describe almost sounds like your colon could be prolapsed. I'm having a lap on October 29th to have this reparied and any endo removed. Best wishes to you!

I went to a pelvic pain specialist after my hyst for endo didn't work. I had 2 really good months before the pain returned. One of the 5 things was diagnosed (besides endo)with was Pelvic Floor Dysfunction. Endometriosis can cause this (and has been proven to at least be related to the other 5 conditions). Muscles tighten when in pain. It's instinct for the body to do this. Many of us have been in pain for so long that our muscles remain tight for days, weeks at a time. These muscles can pull your joints out of place. I had unbearable tailbone pain. My physical therapist told me it was because my hip was so pulled out of joint, it was rubbing on my hip bone. I'm getting a hunchback because my tight stomach muscles have pulled my shoulders and back out of place. It can also affect your bladder and bowels since they are controlled by muscles. All the muscles are connected through the pelvic floor.

Go to a specialist endo or pelvic pain. Don't waste your time with regular obgyn's. They do everything from treating crabs to bringing people into the world. Endo isn't well understood and dr's can't admit they don't know what to do. I saw 4 obgyn's in one year. One wanted to put me on bc... I've been on pretty much everything except the patch and Yaz with no results. Another didn't want to refill my prescription for neurotin which is a "sister drug" to Lyrica. The other 2 wanted me to try Lupron for the 3rd time. I have been through all the endo drugs with no relief.

I have hope now. I don't have pain free days. I haven't for years, but after 4 months of treatments I can enjoy the occasional pain free half day. I hope all of you can find at least that much relief.