Endometriosis Support Group

Endometriosis is a common medical condition where the tissue lining the uterus is found outside of the uterus, typically affecting other organs in the pelvis. The condition can lead to serious health problems, primarily pain and infertility. A major symptom of endometriosis is pain, mostly in the lower abdomen, lower back, and pelvic area.

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Women's Health
/ Endometriosis Support Group

New to the group...

CarlyS
CarlyS

I was diagnosed with endo when I was 17. I am now 29. I joined the group facing a time in my life now where I am in a serious relationship and struggling very hard to get on the same page with my significant other on feeling understood. It makes me feel very alone to face this sometimes and to live in serious pain often. I struggle a lot with anxiety and the combination of the hormonal imbalances and anxiety is incredibly isolating sometimes.


My lover isn't very interested in finding understanding and I feel bad when I feel like I impare their life or good time. Mother's Day just passed yesterday and that is the worse for me. I am worried i'll have to face never having a baby of my own and I wish I had a partner that would listen more. Trying to find some other outlets and support. No one else I have met in my path of life have faced this on the caliaber it impacts my health.


I suppose I just need to know who else is out there and that I am not alone in the difficulties of health, personal relationships, and the way this can hurt someone as a woman. Hopefully this turns out to be some positive support that I am looking for.

KSprizzle89
KSprizzle89
Hello! I feel for ya. I am infertile. It took me a long time to come to terms with not being able to have children. I'm also 29. What helped me a lot was getting into therapy. I went to a doctor of spiritual science and a professional intuitive, as that is what spoke to me the best, and that was where I made the most progress using energy work to let go of my negative beliefs. Now I'm excited for what the future holds and also know that if I want children, then adoption is always an option. Also check out www.endoempowered.com....that is what started me on a different journey and I have become much healthier, body mind and spirit because of it. Best of luck and love and light to you!
Bmich
Bmich
Hi .. Ive recently within the past a little more been diagnosed with Endo. stage 4. Doctor said it was the worst case he seen in 16 years.. ive have to do meds/shots and see another doctor. and it physically been draining because i knew something was wrong and they kept saying my bladder. Now that I have an answer Im trying to come to peace with it. Im 28, about to be 29 and I am trying to take each day at a time. I dont feel anyone around me understands it or has it as bad as i do. Relationships.. smh.. im in so much pain and "Id just be making it up to get out of having intercourse all the time" .. i would sit around w a heating pad and couldnt move.. i just feel really alone. Im a positive person but the past 6 months has been a struggle and im trying to turn over a new leaf accepting no kids, etc.. i dont even want to be with someone right now (which i believe i need time ) but i feel like it took my woman hood. i have been trying to find a right therapist and now im moving out of the state so i got to wait, just want to make friends who we could confide in.
CarlyS
CarlyS
I really appreciate the reply and the honesty. I had a previous surgery on my bladder as well and have faced a lot of complications with pulling and extra tissue do to that. I don't feel like anyone has understood my situation either. My boyfriend lacks a lot of compassion to my situation and it can cause a lot of conflict. Especially when I feel really sick and lethargic. I feel like he expects me to be able to get up and go. I feel like that can cause me a set back for days to push it too much. Intercourse is incredibly painful for me on and off but I try really hard to relax and work on making it as comfortable as possible for me. I really struggle with my confidence as a woman and not wanting to associate with other women or my relationship sometimes because I feel like I can't offer what other women can. It always leaves me worried my partner will get sick of me, my pain, complaining, or my struggles with intimacy. This made me feel less alone than I ever have though. I've never found another person that understands before.
cassandra7
cassandra7
It is really hard, and I don't think other people can understand, but at least there are these support groups. I totally understand and share the frustration, the fear and the pain. My husband is sympathetic, but still I feel he just doesn't get it. It is important to talk about how you feel and maybe share scientific information on the disease, sometimes men are very rational and intellectual and that can help them see that you are not making anything up.