Endometriosis Support Group
Endometriosis is a common medical condition where the tissue lining the uterus is found outside of the uterus, typically affecting other organs in the pelvis. The condition can lead to serious health problems, primarily pain and infertility. A major symptom of endometriosis is pain, mostly in the lower abdomen, lower back, and pelvic area.
He made me cry! not badly, for all the right reasons, he sat there for an hour explaining everything to me. He said I have very bad endo, he also believes I have adeno (sp?) he said he wants to do another surgery estimated at 1.5hrs +++ He showed me how he would do it, what my insides should look like, that there will be alot of in deep stuff he has to remove. He explained the reoccurance for this should be longer but there's no garauantee... he said adeno is a whole other kettle of fish!
He really listened, he explained everything from what he could see in my pictures, what he is concerned about (the fact my ovaries and uterus are hardly visable now and endo everywhere else), fertility rates, what he will do, he showed me pictures of other operations and stages etc. He was the pinical of amazing, I feel my prayers are finally being answered!
He is expensive, but I truely believe well worth it!
G2g,
thankyou for your prayers, they worked! =)
I think this is what we all need. Someone to truly hear our pain. I'm praying for you. Good luck with this new doc. Trust your gut.
Much love.
I explained the hormonal treatments, I said "depo provera for three years" and he shook his head, I told him progesterone and he said "that can have some nasty side effects of it's own".
Essentially I don't think he is going to treat the endo other then surgery mainly due to my track record and I don't know if he believes hormones help for it. On another note he said he is putting in Mirena a localised hormone that should help supress the adeno (if it's there). I told him the other obgyns/specalist thought that wasn't a good idea because all I do is bleed, and he said, I might not, and for adeno it can be quite helpful and if all I do is bleed he'll take it out. It's not for my endo he said it's for the adeno.
He said the lasering was a great idea 40 years ago, he said here in Aus it's rarely practised anymore and thats because it doesn't work it either burns off too much or not enough and you can never tell so it only aggrivates it. He said the two "excisions" I had done, he didn't go in deep enough, he took off the surface. Also all the endo that wasn't apparantly endo is endo ridiculously deep rooted, he said it's going to take him awhile to get it all out.
I sat there explaining things to him from my perspective, he said at one point "you're trying to tell me you don't have endo, that I won't find anything, you know this right?" and I said "no I do know it's endo I know my endo pain, but I've had doctors not believe it could possible still be there or even be there to begin with for along time now..it's just..I'm not use to someone believing me, and you're not just believing me, you're telling me I have a real problem, and possibly more issues then I knew of.."
He said He does believe me and I'm not crazy he has photographic evidence before he even gets in there! He also told me he knows all the doctors I've seen, and they have some sort of "old mens club" sort of thing, they don't want to advance in technology. My first OBgyn shouldn't have touched me, he did nothing, and my second "specalist" never fixed the problem he only took away bits that were EASY. No wonder he has that worried look on his face (remember me saying Jase and I both said he looked worried and was stuttering?), it's because I'm not getting better I'm getting effing worse!!!!
He thinks my problems have been around since I was 9 years old :( and therefore they could be embedded alot deeply then I realise.
My first doctor told me I have superficial endo, in the pouch of douglas and on my ovary. My new doctor told me from that picture I am a "bad case" and I've only gotten worse (it's spread rapidly all over and it's embedded itself horrendously).
How is it, that my previous doctors could be so neglectful....they lied...and I knew they were lieing.
I think what I am trying to say is ladies,
Don't ever be discouraged, if you truely don't believe your doctor is doing the best for you or being honest seek another opinion this Specalist is my 5th opinion.
He has been nothing but honest, he never once told me it could be cured and he told me with adenymoisis (sp?) the only cure is a hysterectomy (which it is wheather we choose to have it or not is our opinion). He told me some doctors have tried cutting it out of the uterus but that's not very successful, and since it's localised to the uterus walls a hysterectomy is the best course of action, but, no one would do a hysterectomy on a 20 year old woman.
He also explained how inferility works in regards to endo and adeno...He also said I am at a high risk of infertility or even being infertile now if I don't get this sorted out.
What I am trying to get accross is I've been told everything is all peaches and cream! When my gut told me it's not...and amazingly, the 1 guy in this state who deals ONLY with endo, fibroids, adeno, PCOS, heavy periods and adhesions (no babies in other words) has come through and pretty much destroyed that theory with the truth. SO please ladies, if your gut says it's not right, seek those opinions, 4th 5th 6th 7th.....12th!