Endometriosis Support Group
Endometriosis is a common medical condition where the tissue lining the uterus is found outside of the uterus, typically affecting other organs in the pelvis. The condition can lead to serious health problems, primarily pain and infertility. A major symptom of endometriosis is pain, mostly in the lower abdomen, lower back, and pelvic area.
So due to my insomnia I get to watch all the weirdo things that come on tv at 2-4am time slot, however I refuse to watch crappy infomercials.
I was watching something on the science channel about how the french chemist Louis Pasteur found a vaccine/cure for Rabies. He basically injected smaller doses of live rabies into an infected patient so there bodies immunity would learn to recognize it and kill it off. Interesting stuff.
So this lead my scientific mind to wonder if they could develop a vaccine for Endo? Like if we get it they could extract some from your body then mix it with something so when its reintroduced to your body your immunity will recognize it as bad and attack and kill it? But then I was thinking, if we did that would it attack the normal endometrium lining in the uterus as well? hmmm
I wish that they had more clinical studies and more advancement on endo and ovarian cysts that they have now.
I was watching something on the science channel about how the french chemist Louis Pasteur found a vaccine/cure for Rabies. He basically injected smaller doses of live rabies into an infected patient so there bodies immunity would learn to recognize it and kill it off. Interesting stuff.
So this lead my scientific mind to wonder if they could develop a vaccine for Endo? Like if we get it they could extract some from your body then mix it with something so when its reintroduced to your body your immunity will recognize it as bad and attack and kill it? But then I was thinking, if we did that would it attack the normal endometrium lining in the uterus as well? hmmm
I wish that they had more clinical studies and more advancement on endo and ovarian cysts that they have now.
Buy only GMO foods (dairy) and only buy hormone free grass fed beef. Stick with it for a month and you will see a huge difference.
http://onlinelibrary.wiley.com/doi/10.1111/j.1479-828X.2006.00512.x/abstract
Basically the group that was administered the experimental vaccine had slightly less than half as many implants as the control group. Interesting start anyway. I didn't buy the article but just from the abstract it doesn't say anything about it messing with their normal uterine lining...but that's not to say it didn't happen. I also wonder if the whole implanting normal uterine tissue into the abdominal cavity as opposed to naturally occurring endometriosis would make a difference as far as testing goes. Not that they have much choice at early stages of testing.
Great topic of discussion. It'd be nice to have a shot to tell my body to get rid of Endo.
Rabies is only "curable" within 24 hours of being exposed. A person must get a shot within that timeframe or it's too late. It's still the deadliest killer out there. 100% death rate; an american teen is the one exception. Once you show symptoms, you're tied down to a bed and left to die a horrible death. Very sad. However I love the contributions that Pasteur brought to us. Finalizing the realization of germs, which previously was ignored by most doctors.
Endo is more like a cancer we are born with and environmental factors make symptoms worse. We certainly need more medical focus on how to best excise the nodules and adhesions as well as the removal of cysts associated with Endo. i.e. chocolate cysts
Personally for the time being, I would like to see a nonprofit foundation assist women with Endo who have no insurance, or just can't afford surgery and medications. There are groups that help people with cancer, I think it's time we help Endo sufferers too.
They have so much more for everything when I was battling cancer, better pain meds, anti-nausea meds, support groups online and offline, so many resources for information, in fact when i lived in boston the hospitals were always calling me to participate in clinical studies etc. They have all kinds of conferences you can participate in and people donating all kinds of services and products to help you.
But with endo its completely different, we have treatment options, but very few, it took me at least 3 months to track down this site for support, pain meds are a hit or a miss, I feel so much more alone dealing with this then I did with the cancer. I've searched for clinical studies to participate in etc but couldn't find any. We don't have any conferences or ways to meet and greet other women dealing with this. I don't feel like this is being researched enough to find a cure or other means to make a patients life comfortable. Its a completely different world.
So I too would love to see more of this kind of thing for endo. I know traveling would be hard for most people but it would be awesome to have a conference to meet all of you and to have speakers telling us all about the latest new advancements, and having workshops on things such as how to deal with pain, infertility, sexuality, how to advocate for yourself etc.