Endometriosis Support Group
Endometriosis is a common medical condition where the tissue lining the uterus is found outside of the uterus, typically affecting other organs in the pelvis. The condition can lead to serious health problems, primarily pain and infertility. A major symptom of endometriosis is pain, mostly in the lower abdomen, lower back, and pelvic area.
Before my endo diagnosis I had a CAT scan, an MRI, and several u/s. The CAT scan picked up both ovarian cysts (report said possible dermoid cysts, or cancer - endo was not mentioned at this point). The 1st u/s I had they said was an error because it showed an ovarian torsion and they said there was no way I could have a torsion because I was walking/driving/etc. So they did a 2nd u/s a couple of days later, and then I wasn't allowed to leave the office until my doctor came in and did a 3rd u/s to confirm the torsion.
So when I went into surgery, based on the imaging reports, I thought I was dealing with just the ovarian torsion and then like a dermoid cyst. I think of the 5 doctors I went to only one mentioned possible endometriosis, and she didn't explain what that was or why she considered it.
My current ob/gyn does periodic u/s at her office just to keep an eye on my cysts. Just to make sure they don't get too big, or that I don't get a torsion again. I used to get them every 3 months, but now I only get them every 6-8 months.