I think my expeirence is pretty atypical. I don't have anything good or bad to say about. It has really helped, but I didn't find it to have any bad side effects. That's just my situation, as I understand most people have s/e from taking it. I was on norethinodrone (progesterone) for over a year before starting lupron. Norethinodrone should be used as add back with lupron, so since I was on it for so long I think this may have been why I didn't have any s/e, but everyone is different.
Using lupron was really a last ditch effort for me to see if I could get some releif. I didn't so im in the process of scheduling my 2nd surgery (excision) for this coming year. I know this med yas really helped some people and some people feel worse using it. Everyone is different. Please, my only suggestion, make sure your dr gives you add back therapy. It will help with some of the side effects and help prevent bone loss that can occur with this med.
Good luck!

I took it for a year. It mad me emotionally irritated easily. I did take an anti depressant with it and that helped. I also did add back therapy because I had hot flashes like evey other hour. I did not cure me. It help to bring my pain level down from a 10 to say a 6-7. I ended up having a total hysterectomy two weeks ago and they still found endo, but also they found cycts on my ovaries, adheisions on my ovaries and cysts in my fallopian tubes!!! So it does not help with cysts at all. I would not recommend using it for more than 6months unless you really need to like me.

I did two rounds of Lupron about 10 years ago. I did the 6 month treatments in 3 months. The first tine it helped immediately. I think I nay have had a few night sweats the first week. The second time I trued it it didn't work at all ... no side effects or anything ... just didn't make a change in my pain. It destroyed my memory though which isn't a huge deal but aggravating at times.

You are spot on in understanding that everyone is different, responds different, and does choose to do it for different reasons. I also did a lot of research and decided to try it out as a way to defer more growth before ttc again (after three miscarriages) following a lap. I didn't have any of the tell tale signs of endo, just lots of abdominal/digestive issues. Anyways it was not for me. It created an emotional crazy person who cried like every hour. Also a lot of anxiety that I used to have returned and I just wasn't myself, even with add back therapy (I am NOT looking forward to the real deal, menopause).

I would recommend doing one month shots at first, then if it works for you, do a three month shot, but don't go right in with the three month, b/c then you are stuck with it until it runs it's course, I'm so thankful I did only the one month. One last thing, you should know upfront that it can take 1-3 months after stopping to get a period again (just in case you are doing this for fertility issues, if not disregard, but I didn't know this before starting). Good luck and you can check out my blog for my weekly updates with my experience on lupron. http://mrsandmre.blogspot.com Best wishes!

Thanks everyone for sharing your experiences!

VallyWillis 27 - My doc talked about doing add back with the Lupron to minimize the side effects so that's good.

vansanturtle - i am definitely worried about cysts so that is a bummer to hear. My doc is only wanting to do a 6mo round of Lupron.

ksengbers- thanks for the info. i will def talk to my doc about the 1mo shots. I had a lap, excision of endo, ablation and tubal a few weeks back so fertility is not a concern. Hopefully i won't have a period at all after the ablation!

This is probably too late to help any, but Lupron increased my blood flow so much that I was rushed to the ER yesterday because I lost so much blood. ER doc said I was on the tipping point of getting a blood transfusion.

I'm not sure if you've decided if you're doing it or not, but in any case, good luck! Hopefully it'll work :)

Been in it twice yea!!! Once after my LAP and diagnosis for 5 months then a second time for 3 months after by 2nd round of IVF. I was 28 the first time around and I would lie it wasnt fun. The side effects are very much like real menopause so I decided to try and take them in stride to some degree, hey Im going to have to do it sometime right! Now Ill just have a step up on the real thing I had hot flashes, night sweats (sucked by the by), a few headaches but then those could be just as much from the stress I was under than anything else, my emotions were a bit off, as my Mom warned me watch your sharp tough! and so I did teehee. The most unexpected was my hair and skin dried out. But after, I went straight into continuous BCP and short of any normal/abnormal reacts for BCP the side effects went away rather quickly. And it worked, calmed everything down, I have had shrinkage to cysts with it not huge certainly hasnt gotten rid of it but was to the point that the BCP was able to keep things that way, I was for the most part pain free and growth was very slow.
The second time I sort of knew what to expect and so was pleasantly surprised to find they werent nearly as bad, of course I had been able in introduce a few things that I hadnt had the first time around, exercise, acupuncture and some extra coping skills. My hair even stayed normal. And again it worked, calmed everything back down so I could go into my last cycle healthier.

I did two 3 month shots following my lap with add back. My pain was significantly reduced during that 6 month period and for an additional 3 months afterward. If your goal right now is pain management, I say give it a try. Good luck doll :)