I get that too, but I have degenerative disks in my back. It sounds like you have sciatica, but it could just be referred pain from your endo. Stretching sometimes helps, but the best thing to do is take it easy.

I get the same thing, but when it happens to me my right knee will always buckle so I assume it's nerve related. Not sure beyond that...

sometimes that pain can be cause from bad cysts get to with the endometrosis . usually every 4 years my doctor does surgery and removes the scar tissue and the cysts be causing me bad pain and back pain .... sent me a message if you ever need to talk ... take care

Low back pain is one of my worst symptoms, like you said it really goes all the way down! I just take OTC pain killers which helps but doesn't get rid of it by any means, and a lot of hot baths...I feel bad for our water bill. I wish I had better advice! I'm hoping my upcoming lap with a specialist might improve it though...maybe he will find what is causing it and remove it. Last lap didn't change it at all though so not going to get my hopes up too much.

This was my worst symptom for years. I did physical therapy for my back (minimal help), did cortisone shots to my spine (very very helpful), a lap also helped, and surprisingly my IVF treatments made the pain go away, which shows it is related to the endo and my hormones.

Now I am doing accupuncture and it is the bomb for pain. Don't ask me how, it just is. 24 hrs after the treatment, I feel relief.

I agree with the other posts, check that you don't have a cyst. It was the worst for me when I had an ectopic pregnancy and a large cyst.

Thanks for the advice!! I actually think I have a cyst on my right ovary because it has been hurting in that area more than other areas. And the back thing is just getting worse & more frequent. It seems like I get a cyst every 7 or 8 months (at least that is the record with the past two), so maybe I am due for another one. If that is in fact why my back is acting up & why I have this pain on the right side (like a deep aching but sometimes it sharpens without warning) I am worried because I am going on leave to Phoenix for a month & the closest military hospital is like an hour drive in good traffic. If it is there & it pops, uh oh. Haha. Any suggestions? Thanks again!

my sciatica symptoms that correlate with my cycle have been going on for years....i even had a period fairly recently in which i woke up one morning to my left leg feeling heavy, almost dead and i couldn't move the last three toes on that foot. i was semi paralyzed. went to a neuros office....saw the PA first and she immediately had x-rays taken in the office to see if i had a fractured pelvis. nope!!! not it! saw the neurosurgeon over a week later when my period was over and thank god!!!!... most of the feeling and motor function had returned....( oh and i had mris galore done in the meantime) nothing showed up on any of them and so when i saw him and tried to explain that i thought it was endo related...i was totally dismissed within 5 mins and with the neurosurgeon saying...well i don't know anything about endo.
fabulous.....my lower back has gotten to the point where it's seized up every damn day and i can't stand for more than 10 mins at a time...i'm stuck using a wheelchair whenever i have to go anywhere....really sux to try to shop in one!!!! so, i'm pretty much stuck at home all the time now and am (hopefully temporarily) disabled. receiving benefits finally after a long fight to obtain it.
i really hope you find an answer to what's happening to you and if you do i would be extremely appreciative if you would let me know and send an update. so sorry tho and i know that when weird stuff like that happens it's frightening. i totally did not write this post to scare you and hope it does not but just lets you know that there are odd things that endo can cause....and some of my issues may be adverse long term side effects of the lupron injections i've taken...i don't know at this point aside from the sciatic pain that i know is endo related. lupron was the only thing that totally freed me from that pain and it returned only when the shots wore off....but with my back and some other oddities that are occurring i will have to keep pressing for answers.

hugs~jen

OMG, I'm so sorry to hear about the recent news with your back. That sucks! Really sucks.

I have an update on my back: it did get better. 2 laparoscopy surgeries and I have minimal back pain. They removed scar tissue that was pulling on my muscles which probably caused problems with the nerves. I used to get these horrible horrible shooting pains into my toes and back up, and I don't anymore. Have you considered getting another lap? That totally sucks that you are disabled.

I must also ask: have they tested for MS? My uncle has MS and I know that problems in the extremities is one of the symptoms. Seeing as you are seeing a neurologist, I would bet they did consider this...

Gosh! I'm so sorry to hear your news, and hope that you either learn to cope with the new symptom or find a good treatment. Huge hugs...

Yes, low back pain is a very common symptom of Endo.

About 7 years ago I asked my doctor about two painful spots on my lower back. My low back pain seemed to spread out from there and there were these two knotty things. It hurt to put pressure on them. My Gnyo said it was fat. Since when does fat feel pain? Last year I was getting a massage and my therapist got to that point in my back. She was so shocked at how tight I was. My prior massages were always for my shoulders and neck. Those two knots? She told me they were knotted muscles. Why the pain and tightness? That part of the pelvis is where your muscles attach your Uterus to it! If there is a problem with your uterus you can also feel it in your lower back, due to the muscles being pulled, twisted, etc. Have your back checked out by either a reputable chiropractor or a massage therapist (both if you can afford it). I first felt those two painful knots in tenth grade. It's gonna take me years, if it's even possible, to get those muscles loose and in proper order again. I currently can't afford any more massages so I am doing yoga stretches when I can, and heat therapy is a daily help.

If muscles in the hip region are messed up, they can pinch nerves that run through there, especially the sciatic. They can also put pressure on the major blood vessels. I used to have really bad numbness in my left leg at the same time I would have painful sciatic pain. It would start as intense low back and hip pain, spread to my entire vaginal area and then down my leg. It used to freak me out, till I learned what was going wrong. I've learned more about anatomy with endo than all my years in school. lol

I also have chronic low back pain that started in 2009. Pretty much any time I sit I am in pain. It's only in my low back/buttocks though. I dont get any leg symptoms. I have had 4 steroid injections and have tried several anti inflamatories. Lots of physical therapy. Nothing helps. My MRI shows slight herniation as well as degenerative disc disease. I was just diagnosed with stage 4 endo though and wonder if that could be the real cause. The thing is that my back hurts all the time. Not just during my cycle. Not sure if that matters.

My back hurt all the time too. 4 years of extreme frustration (pre-endo diagnosis). I too have a 'slight herniated disc (l4/l5) but so do most people (I read a lot about it when I tried to find solutions), and for many a slight herniated disc won't cause pain.

I tried PT, nothing. The cortisone shots to my spine helped, but were temporary. My doc has since said this makes sense because cortisone reduces inflammation in the area where they inject, so duh! It helped.

But only temporarily. It started in my butt. Just my right cheek, which was also weird because the herniated disc was protruding more to the left, the docs didn't quite know what was going on. Then it started to hurt over my hip too. a few times it would radiated all the way down my leg to my heel or foot. But it mainly stayed in my butt and hip. After the first lap, I saw an improvement. I could lift my than 10 lbs without my back going out!
Then before my second surgery it got worse, I couldn't even twist in the waist in my yoga class (gentle yoga class, with a bunch or grannies) without crying. It was aweful. But, that too went away after my second lap.

My back is still not perfect, I cannot wear heels without getting a pins and needles sensation but hey, it is soooooooooo much better than before when I was practically in tears many times because of the pain.

Doctors really frustrated me. Back doctors don't know endo. And my 'expert endo specialist' that I drove all the way to John Hopkins to see told me and I quote 'your back is not a reproductive organ, so I wouldn't treat it.


Arrrrrrrrrrgh! So if I seem synical about endo doctors, this is why. I finally found A single endo doctor in California who treats back issues too (dr cook) and so my next surgery will be with him so maybe I can get the rest of my range of motion back. I know I haven't technically met him yet, and yet I build him up a lot on this board, but he's the only one I've found who says they treat ever symptom. Sigh, ok, I will stop rambling.

Ktk, I hold out hope for resolving some or all of the back pain. Can you imagine life without back issues? Amazing idea, right?