Yep, for me it is more hip pain, but it does radiate down my legs. One time (before I knew I had endo) I had such bad leg pain I went to the er thinking I had a blood clot or something in my legs. It did get much better after surgery, though. When was your last lap?

Yes ma'am!! It will hurt so much all I can do is lay down and not move. I hope you feel better!

I had my first and only Laparoscopy done in September. I had been putting it off for a long time, because I'm a full-time college student with no health insurance, so I've had to pay for everything out of pocket.

I have awful hip and leg pain...my doctor has attributed it to the two stress fractures in my back, but I think that it may have something to do with endo. I have read that if endo gets on certain nerves like the obturator nerve or sciatic nerve, it can cause these symptoms. For me, I am only comfortable when I stand...

Sorry I don't know more about it- I am planning on asking my doctor about it also.

@rcwals-I have been dealing with Sciatica pain for a long time, and I always thought it was coming from something I was doing, so I always brushed it off. I never knew until recently that it was linked to endometriosis. I'm with you, sometimes I can't even stand to sit down, if I try sometimes it takes my breath away. I hope you find some relief!

That's one of my worst symptoms. When the back pain gets too bad, it radiates down into my butt and the back of my right leg. I've been told it is sciatica pain from the endo either on the sciatic nerve or nearby (and pushing on the nerve). There's not much that helps beyond heat and laying down. Anyway, I definitely relate.

All the muscles react to each other and, for us, they all want to cramp up together. Also, things can be pulled out of alignment, even via your adhesions. My left side is my worst as that is where scar tissue is pinching a portion of my bowel, my left ovary has the chocolate cyst on it, and my left psoas is tighter than my right. When everything cramps up there it can pinch nerves, including the sciatic nerve which runs down the leg. It is truly an extreme pain. I nearly passed out during a summer college class, thankfully I collapsed near the office and the ladies came to my rescue.

Therapies that help me are:
daily psoas stretches (sitting alot keeps it tight)
heat therapy when it cramps, and lying in bed
cyclobenzaprine (muscle relaxant) when the severe pain hits
massage therapy to help loosen the hip muscles

I strongly advise massage therapy for everyone, no matter the health problem. Just be sure to get a certified therapist and not just some run-of-the-mill massage. My therapist is expensive, but when I CAN afford to see her. she truly knows her stuff and even helped my left side. She could tell the difference between muscle and endo adhesions! Hope this helped. :)

I have implants on/near the sciatic nerve too and get shooting pain down to my toes. No advice other than the standard heat and pain meds, but my gosh, you have my sympathies. It's awful.

Yes! It's mostly in my right leg. I have a funny feeling in my thigh most of the time, and when my pain gets especially bad, pain radiates to my calf and ankle. The pain is identical to the pain in my belly, it even pulses the same way, so I'm sure it has something to do with a nerve. Standing for a long time is really difficult. Oh, endometriosis, is there anything you CAN'T do?

Me too! My pain is always in my lower back and as I walk or stand it goes to my hips and if I dont relax it starts aching really bad down my thighs. Usually stops at the knees, but I have had it go down into my calves quite a few times. laying my legs on a heating pad helps. it would be awesome if someone would invent heated sweatpants for women like us!

Mine is in my lower back, butt, and the top of my thighs :/ ughh, it's horrible. When I was in high school, sitting in a desk all day was miserable; my butt would hurt so bad. At the time I thought it was normal and that all other girls dealt with it too, so I didn't want to be a wimp about it and just ignored it for years.

Absolutely! For a long time(until reading your post) I thought it was circulation problems. It starts in the hip/buttock area and radiates down..sometimes to my ankles. It almost feels like and achy/cold pain deep in the body especially and muscles. Everyone thought I was crazy, but it always happened right before during and right after my period.

YES!!! I get horrible leg pain. Sometimes i can't walk, other times it feels like they're going to explode. I try to prop them up at work... it doesn't help. They hurt to touch. I have never asked if it is endo related but I'm sure it is. Hope you find relief!!!

It sounds like most of you are describing is piriformis syndrome. It is endo related, but not from endo itself. It is caused by a chronically tight muscles (specifically the hip flexor). As we all know, treating endo can be a real bitch, so it's always good to know some of the other sources of pain that can be treated more effectively. Deep tissue massage, yoga and pelvic floor therapy can all be helpful. I've used muscle relaxers in a pinch, and a friend of mine swears by chiropractic adjustments. Hope this helps!

The periformis pain is the first endo symptom which caused me to go to doctors for years on end.

For the record - it went AWAY COMPLETELY after 2 things:
1. my first surgery. went away for about 3 months, then came back.
2. IVF treatments. DH thinks that it was all the progesterone shots I was on. The back pain (and leg pain) went away COMPLETELY as soon as I started the shots, and came back about a week after I stopped taking the meds.

It's the most painful part of my endo suffering and drives me batty! I've also done cortizone shots to the spine, that also helped a ton and lasted about 6 months. Still, the pain was partially there. Only the surgery and IVF treatments caused the pain to go away completely...at least for a little time.