Endometriosis Support Group

Endometriosis is a common medical condition where the tissue lining the uterus is found outside of the uterus, typically affecting other organs in the pelvis. The condition can lead to serious health problems, primarily pain and infertility. A major symptom of endometriosis is pain, mostly in the lower abdomen, lower back, and pelvic area.

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/ Endometriosis Support Group

GYNO...DON.T ALWAYS KNOW!!

WTHRL
WTHRL

Well, my endo journey begins......Alone.


Why is it NO ONE believes you are in pain?!! 


Why is it you feel alone, alienated because you are in the fetal position, in bed for days due to excruciating pelvic pain, lower back pain, cyst, cramps, heavy bleeding, not bleeding, blood clots the list goes on you get it.


Why is it my GYNO said to me, “Don’t worry this is normal” WTH!? Are you kidding me!!!!??!! I am no doctor but I am certain this IS NOT NORMAL BY ANY MEANS!!! IF your Gyno/Doctor does not invest time in seeking a solution to your ISSUES FIND A NEW DOCTOR!!!! 


Yes, I am upset, confused and on this endo journey......Alone.


My family thinks I am crazy & overreacting. My Doctor....well she SUCKS! We are women, we give birth, how can pelvic pain be debilitating??! Pop a few pain pills, take your birth control & I’ll see you in three months is the response from my doctor. I feel so alone and lost in this world of endo. And my journey has just started. 


How did you guys get through your journey?  I can’t give up but I feel so alone & lost I’m exhausted 15+years with these issues??? HELP!? Thanks for your time. 

MzDonald430
MzDonald430
I felt the same way you did going through this. It's a horrible, excruciating journey to go through. I got through it by doing what you just did, talking to people that understand you're not crazy, you're not making this stuff up, you're not overreacting, YOU HAVE ENDO!!! There's a support group specifically for women with this that may give you more support than on here, but talking helps. And like you said, keep searching for a doctor until you find one that listens. Ironically, I found that in this department, men listen better. Message me if you ever need to talk.
CarlyS
CarlyS
You are definitely not alone! I have been struggling a long time myself also and it's been a really up and down battle. I feel like a lot of people thought I was crazy or over dramatic and I was feeling awful.
I still face a lot of the critics in my life unfortunately including my own significant other sometimes but that is why I started to reach out to a community of people on here. My mom has been my biggest support on my journey but sometimes that doesn't always cover someone else relating to the pain and loneliness that can come with it.
I had a horrible gyno when I got diagnosed that got me on medication to manage the endo pain and surgically diagnose me but he put me on the Depo shot much longer than recommended and left me very uneducated on what I was facing. I ended up facing a lot of complications due to the medication and switched doctors. They all made me feel hopeless and unheard. I do yoga really consistently now to help with the pain and stay on a keto diet to help with the inflammation. That has helped me find a lot of relief.
I still worry often and get caught up in crazy thoughts. I feel like I'm not as adequate as other women and that something is wrong with me or my boyfriend will leave me. It drives him crazy and he doesn't understand my thought process or acknowledge that I even live with pain. I have found relationships particularly hard.
Please don't forget you don't journey alone. How you feel is relate able for other people facing what you are. There is support out there. Starting to provide yourself your own support system like this will help you feel less crazy and give you some people to listen. That is a great start.