Endometriosis Support Group

Endometriosis is a common medical condition where the tissue lining the uterus is found outside of the uterus, typically affecting other organs in the pelvis. The condition can lead to serious health problems, primarily pain and infertility. A major symptom of endometriosis is pain, mostly in the lower abdomen, lower back, and pelvic area.

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hotchocolate 08/04/2014

I was on a trip with a friend this weekend. I had a horrible week before with cysts/ruptured cysts/new yucky bc pills, etc. I was concerned this trip wasn't even going to happen. t really did a great job of walking around for awhile. We walked around for about 3 hours before I said I needed to sit down. She knows I have endo. Her comment was "Walking makes my cramps better. We should keep walking!"

Ugh! Just so frustrating when someone close to you doesn't get it...at all! I eventually told her I needed to go back and lie down with my heating pad and meds.

Jessye 08/05/2014

I totally understand that!! It's like yeah, your cramps feel better when you walk because you don't feel like you are being stabbed from the inside out. Some people don't realize that our pain is a completely different pain than normal girl cramps. They assume just because you have "chick" pains that is is just a little more intense than their weak cramps. It is annoying and frustrating. Although I know they either don't mean to offend, or in the case of people who we aren't that close to, they simply think we are being dramatic. I feel ya!

pmasterson1 08/06/2014

Oh my gosh, thank you for sharing this. I am totally with you! It is so hard to get others close to us to understand the pains and emotions we go through on a daily basis. Just because our pain isn't shown on the outside doesn't mean it's not there. I feel like so many people around me just think I am over reacting half of the time when really they have no idea how much pain there is sometimes and how
Much it can effect our everyday lives. I think we just have to learn to accept that others who don't have endo will never truly understand, but hey at least here we have a place to complain and let it all out without doing it to those people (: hope your feeling better

IrishZoe 08/06/2014

Hey hotchocolate,

I can totally relate to this. I remember one time being at work when I was hit with the worst endo pain ever, I was sweating the pain was so intense. I knew I needed to go home as I couldn't control the pain. Anyways I went into my manager to inform him I wasn't well and the reply i got was (and i quote!) "You don't look sick".

It seems people who don't suffer from regular pain don't really understand what it's like to have build up the energy to do the small normal things like walking.

Hope you feel better today, remember you're not alone xx

hotchocolate 08/06/2014

Thanks! It helps to know I'm not alone. I realize I may be a bit overly sensitive, but it is hurtful when someone close to you acts like and thinks they understand, but really don't.

spoonie139 08/09/2014

This type of thing happens to me all the time and honestly irritates me more than it probably should. My sister says things all the time that aren't meant to be hurtful but they just demonstrate a total lack of understanding, and unfortunately I think it's something we all face on the daily :/

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