Hi, not meaning to talk bad about your doctor but his job is to help you and if he is not giving you pain meds that is unacceptable. I am assuming you have had a lap to diagnose the endo? If so was it not removed at that time? A hysterectomy is not a cure for endo. It will help if you only have endo in your uterus but not if it is on surrounding areas. Just because you had one miscarriage doesn't not mean you can't have children. You need to see a specialist because your doc is not giving you the care you need. ((((HUGS)))))

Thank you whyme Im scheduled to see the specialist on the 16th. I don't like going to Phoenix it is far away for us but I guess now I have no choice. My doctor isn't handing out pain scripts because we just had a doctor in town who was investigated by the DEA for writing over a 3 million a year and patients who were caught selling. They ruin it for those who really are in pain. So there really isn't one in town who really listens right now. I know a hysterectomy isn't a cure all Im just reaching for straws this morning when Im in painthe surgery seemed to work for my aunts there endo hasn't returned and this will be my 5th surgery so Im less than thrilled for yet another one. My family is tired of seeing me like this and I don't know how to best explain it. JUst trying to get through the past few days has been hard and that's why my doctor did prescribe the pain meds this time.

You're welcome. I understand better now. You sound like me I have had 6 laps. and every single time i told them if my uterus looked bad to take it out but it was always ok. I understand how you feel .... just want the pain to stop no matter what. Look into pelvic floor therapy. I was having so much pain in my uterus area that i thought was all endo but it turned out that it was a seperate pain. My pelvic floor muscles were really tight and were causing that seperate pain. It is just something to look into that can help. Sorry you have ot make that drive but you have to do what you have to do. I am glad that your doc did give you pain meds. I hate when idiots mess it up for us BUT the doctors shouldn't punish those who they know need the pain meds.

How should I best talk to my family about this?

I know how you feel. .. im 23 and will be having my 5th surgery on Tuesday. I feel done a lot too. Pain isn't natural. And for us it becomes a daily part of life. Im sorry you are going through all of this. If there is anything i can do for you... please let me know.

Huge hugs and welcome.

I hear you about starting with a new doc. It's so annoying and nerve racking. I'll be sending you some positive charma on the 16th. Hopefully this next doctor, this next surgery does the trick.

I am having a hard time with doctors also. when I turned 30 I was diagnosed with stage 4 endo, the doctor stated he did not want to do the hysterectomy because 1. my age, 2. I only have 1 child.
After several tries on the medication and alot fo money in co-pays I have been trying to cope. 2 years ago the pain became so severe that I would vomit through out my whole menstration. I returned to the doctor and he stated my organ has failed and I needed the hysterectomy. That devistated me. I began to feel like less than a woman. To my suprise 2 months later I became pregnant, not with 1 but with 4! Like wow! My whole life felt so happy and confused at the same time. 15 weeks into my pregnancy I began to lose them 1 by 1. this process took a total of 4 and a half months to complete. Now my life is torn apart.
The decision to hold out, or to end my womanhood it too hard for me. I do not want to do the wrong thing. Is there a right thing? Cause I am starting to feel the doctors are taking advantage of my position and putting me thru redic test after redic test. My miscarriages started in the summer of 2011, now that it is 2013 the doctors still have no clear answer for me. Does anyone have advice?