Endometriosis Support Group

Endometriosis is a common medical condition where the tissue lining the uterus is found outside of the uterus, typically affecting other organs in the pelvis. The condition can lead to serious health problems, primarily pain and infertility. A major symptom of endometriosis is pain, mostly in the lower abdomen, lower back, and pelvic area.

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ssf93 09/10/2016

Hi! I am 23 and I have had diagnosed Endo since about 2012- but been treated for it since about 2011, since I was 18, and I think had it since starting menstruating at 11 years old. I started with birth control, then moved to an IUD (no periods!) (Mirena) and a laparoscopy in December 2013, which helped greatly (I want to say I was Stage 3?). Adhesions returned, of course, and I had a robotic surgery in April of this year, so about 5 months ago, and retained the IUD.

Until two months ago, I was a virgin and so I hadn't had to address any sexual concerns other than dealing with emotions regarding infertility, etc. When I became sexually active, it was okay for about the first month, but I immediately contraced 2 UTI's, which I treated ASAP (also got tested and everything was clean). The past month (having sex 1-2x/wk) I have started having pain after intercourse, and it doesn't help that my partner and I are into going fast and hard, or that he's nearly 9".

I went to Urgent Care today because I was convinced I had another UTI but the doctor told me no, but that he expects I have dysmenorrhea from what I told him (wasn't a great experience, felt very talked down to - unlike with my OBGYN - and basically felt like a child when asking questions because I am still so new to sex). He told me to wait to have sex for a week, to always use condoms (we have not been and are monogamous), and that I can only have slow sex.

REALLY? Is this what the rest of my life will be like? I enjoy sex and have a very high sex drive even though I have been unable to orgasm (chalking it up to endo/antidepressants) and want to hear some tips from others or perhaps natural ways around this. I would like to be able to have a normal sex life and go at whatever speed I wish. I follow a fairly unprocessed diet but am considering going wheat-free...

Been reading The Hormone Cure by Sara Gottfried and it seems to have some helpful ideas - wondering if i have a progesterone/estrogen imbalance. I am willing to do what I need to do to make sex an easier experience for me because I feel myself drawing away from him because it's depressing me now. Whether that's medication, diet changes, exercies, hormone therapy, etc.

Anyone have any tips or experience? The Urgent Care doc brought up a hysterectomy, of course, but I am 23 and not ready to make any decision like that. I had to call my brother and have a good cry because I felt so confused after the appointment.

-Sarah

KSprizzle89 09/15/2016

My worst symptom is pain with intercourse. It hurts to walk, sit down or stand up for 3 days afterwards, or at least it did about a month ago. I started being really strict with what I was eating again. No wheat, no dairy, no sugar, no processed foods, no soy. It took about two weeks, but I was able to have sex again with no pain and even started having the big O again! Yay! lol and no I don't only have slow sex. Def make sure there is a good warm up before hand. The more turned on you are and I mean the more prepared you are for his entry, then the less it will hurt. Unfortunately there is no miracle cure for that symptom. I have been looking into a hysterectomy, although I'm all over the place about it. I will be 28 in January.

KSprizzle89 09/15/2016

Also, look into pelvic floor therapy. I have heard that it can help a lot with intercourse pain.

emma_brad 09/21/2016

I too have had this problem i find it best to avoid close to my monthly also alcohol has a big affect on endo and can aggravate it no end, listen to what your body is telling you and if you need to slow down then do just that! Extra lubricant may help regardless of if your dry or not and regular anti inflammatorys too. As your man is well blessed at 9" I would also suggest if your in some pain but still want to be rampant that you take control on top as you can then control how much you have without sounding crude but this should also stop any triggers also.

endomom1 10/20/2016

I had pelvic floor therapy and it saved my sex life! also avoid doggy style or when in that position have him not go all the way in. I still have to tell my husband to chill out sometimes. It's hard, it sucks but if you over think it, you'll never have a good orgasm. Next time you decide to have sexy time tell him you want to be teased until you orgasm before he can get his. Hoping he will rise to the challenge!

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