Endometriosis Support Group

Endometriosis is a common medical condition where the tissue lining the uterus is found outside of the uterus, typically affecting other organs in the pelvis. The condition can lead to serious health problems, primarily pain and infertility. A major symptom of endometriosis is pain, mostly in the lower abdomen, lower back, and pelvic area.

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endo on ureter, pain!

honor435
honor435
anyone have endo on bladder or ureter?
im having it removed 6/16, they have to cut open tummy, scared, to be out of work, no money,hubby no too good w sick or hurting people.
deleted_user
deleted_user
Hey darlin!!
I hate this illness so so much.
I had some endo excised off ureter last week. It is of course far too soon to tell if it worked so I can't give you any advice about that ...
but...
I can tell you that someone on the planet knows exactly what and how you suffer and sends you love and light and well wishes for 6/16.
.xxx
deleted_user
deleted_user
Yes I have endo on my bladder and ureters as well. I pretty much have it all over all my organs and also the sciatic nerve.
I wish you well with your surgery!
honor435
honor435
zipspain, did they remove it? did it help? I just dont want to have another surgery for it not to help.
deleted_user
deleted_user
My daughter has endo on her bladder/other organs. Her dr. burnt it off 2 yrs ago. The dr. said they didn't get it all off of her bladder because it was deep/bad on it. So I am sorry to say it didn't help her. That of course, doesn't mean surgery won't help you. I do wish you success with your surgery..You probably already have asked your dr. lots of ?. When I had my surgery I thought of a few more ? after I left his office. So I made another appt. to get more of my ? answered. I also researched the surgery. I do hope it helps you.
Christine1976
Christine1976
I had a lap a year ago and I have endo on my left ureter. My Dr told me at the time that it was too risky to remove it...unless my symptoms from it were worse than the risk to remove it...so I didn't have it removed yet . Wish you well!
deleted_user
deleted_user
My doctors said they couldn't remove the endo from my ureter, so make sure your surgeon can reassure you he is trained enough to do that. I find it is painful, but lap surgeries are pretty easy to recover from. Maybe make a list of what you need your husband to do, so he has some guidance? Not sure if that would work.
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