I’m new to this site and decided to get this a try for various reasons. First, because it’s easier to express myself and for those that do not suffer from endometriosis will not understand.
I have suffered from endo for several years. I went to various doctors but none were filling to help. First doctor I encounter asked me if I was serious about my symptoms and asked if how do I know what I’m feeling and what’s happening to me. I sought out another doctor who suspected I had endo but was more occupied on me getting pregnant and said I shouldn’t worry and that’s nothing to worry about.
A few years ago, I met someone who I worked with that has endo so she was able to help and she felt I had endo. She recommended me to her specialist and I was confirmed for having endo.
My husband and I tried for a baby for about four years. It wasn’t until that fourth year where I discovered the endo. Long story short on this, after my first endo surgery I became pregnant with our little miracle baby that is now four years old.
About 2.5 years I started becoming really sick and I suffered with a lot of pain. I’m having what feels like hot flashes. I’m also experiencing a lot of nausea, shaking, cold sweats and a lot of feeling fatigue. I had my second surgery in 2016 where they found that the endo had spread to my bladder so going to the restroom is quite painful and make me feel very weak and hot. I’m not sure who has experienced this. Any insights would be helpful. I also noticed that the types of food affect how I feel. Having a healthier diet helps a little but not much. I have to avoid alcohol, dairy, and greasy foods for the most part.
I've had such a difficult time dealing with this condition and it's hard to find anyone who understand or is willing to listen and not think I'm crazy for feeling the way I do. Most days I feel like I can't get up. The pain is too much and I spend of my time on various pain killers that don't quite work anymore. The worst pain comes from when I urinate and it kicks back to my kidney area. Again, any insights would be helpful.
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