I have felt the same way lately :(

I'm so sorry you're having a bad day. it sucks even more that theres nothing we can do but fight through it.

This board kind of turned into a shitshow for me. Lots of drama, lots of "my endo is worse than yours", lots of people with no diagnosis making ridiculous claims about what "cured" them, and lots of the same questions over and over and over with DS refusing to make sticky posts for us. It's really sad actually because it used to be a great place for support and now it's just...blah.

But I'm sorry you're having a bad endo day. I'd punch that bitch in the face for you...if she had one, anyway. Heat, Motrin, and heat heat heat heat!!! xoxo

kDeezy, I know, I know. same questions every stinking week. also the drama, drama! I think it pulled some of my earlier friends (yankee for example) away from the board. then again, I can't claim to be innocent because I know when I was in a lot of pain and someone was attacking me about my responses...I wasn't an angel either.

how can we support each other? I think you're probably right - since DS hasn't supported us (for example, their description of endometriosis was wrong so I asked them to make a minor change, and they NEVER responded) - maybe we form our own board. even DS has private boards only open to those that are invited. those of us with ongoing long-term issues need to support each other, right? Misslliss and kDeezy - you with me?

Kdeezy hit the nail on the head for me! Too much drama. And I found myself feeling so much worse when id get off here because certain people were making me so angry with their comments,etc. so I just stopped....I actually took myself out of this group but I still check it every once in awhile. I guess all in all I stopped because I wasn't feeling supported and was feeling worse after being on here.

I'm sorry you are having such a bad day!! What's going on?! Having a bad day myself....skipped two periods at the beginning of the year....then had weeks of non stop bleeding....went back on depo provera...had 4 weeks of no bleeding but have now been having increased bleeding over the last two weeks. Started as spotting but today is heavy and painful. Running a 10k on Saturday (forecast is raining and in the low 40's) blah!!!!

you go girl! a 10k? that's amazing!!

I do physical therapy because much of my endo pain is back pain. this week the back pain started going into my calf and heel again (tingling and stuff) so my PT guy worked me over something good. in response? I'm finally going #2 in...oh, I don't know, obviously a while. I hadn't really noticed (are most of us constipated? I don't go #2 every day like my hubs for sure)

I have so much pain with doing #2 now that I kind of pass out/fall asleep after going. I went 3 times today and still feel tingling in my calf and still feel awful. I took my pain pill today (am on a daily pain pill these days, it helps generally but not on bad up days like today). I should probably apply heat - you're right kDeezy! but I can't get my butt off the couch or out of my bed. let alone where is that dumb heat rice sack thing I used after surgery? our place looks like a tornado these days because of our 18 month old...

I'm serious about jumping ship. pm me if you're considering it too. there are a handful of us who could really support one another and do some good not just for ourselves but also for endo...

Thank you! However I'm feeling very ill prepared for it this time around!! It's usually a fun weekend (the 10k I'm doing is part of the illinois marathon which takes place in my town) but the weather has it feeling less so!! Running (or power walking as I'll probably be reduced to this time around) in cold rain doesn't sound at all pleasant!

Pain meds themselves can cause constipation. I have ibs (on top of endo and fibromyalgia) so I go back and forth between being stopped up and not being able to stop!! Taking miralax when I'm taking pain meds seems to help me with the stopped up part!
I hope your day gets better!!!

I was kind of wondering the same thing. I'm a new addition to the community, but I was kind of hoping that there would be more activity here.

As for the constipation: I hear you 100%. I don't know if it's the pain pills or what, but I do know I'm reluctant to go as often as others because it hurts so freaking much.

Anyway, I hope you ultimately find the support you're looking for somewhere. And I hope you can find some relief from the pain.

I'm totally with you a private board is a great idea! I agree I just wasn't feeling totally supported. I had my 2nd lap in sept and the pain is already back more furious than before.

Kudos on the 10k Christine!! I'm not a runner but I have been working to get in shape for my sisters wedding which is now only 2 weeks away. Yikes!

I'm so sorry that you all are going through this. I'm also going through a lot right now and looking for support. I had my third lap in July but endo symptoms came back with a vengeance a few months ago.

Thank you miss!! I hope we actually get to do it....forecasted thunderstorms for tomorrow! :-(. It wouldn't bum me out too horribly but I'd feel really bad for all the people who are running the half and full marathon....all that training!! Hope it will just be maybe drizzly rain with no thunder!

I do try and come on once a week minimum. I am on Facebook thoughyears ago this board was so lively you couldn't keep up. most of the women from then have left due to what kDeezy said. I'm not tainting everyone with the same brush though, we all have our moments myself included where we think no one could possibly have it worsethat's when we need the most support and understanding to know that we are all suffering, sometimes worse sometimes not so much.

I'm more than happy to chat more on Facebook. I'll be honest it's easier to chat there because it's attached to an app on my phone.
This is my profile:
https://www.facebook.com/taters05

Ok, I created a private board, please PM me and I'll add those of you who haven't reached out.

We can do this! We can support one another.

xoxo

Well Im getting to this a little late (clearly you can tell I dont come here that often anymore).
I personally didn't like a lot if the drama. Plus, the misinformation on this board was starting to drive me nutty (no offense to anyone, but the only reason I have finally gotten proper care is because of accurate info I was able access through other sites).

Endowife, I would be interested in your group. But just so you know I belong to another group on FB that I love and it is a closed. It is more information, research based but that does turn into support as well. I think you would like this group! I hope you are doing ok.