Endometriosis Support Group

Endometriosis is a common medical condition where the tissue lining the uterus is found outside of the uterus, typically affecting other organs in the pelvis. The condition can lead to serious health problems, primarily pain and infertility. A major symptom of endometriosis is pain, mostly in the lower abdomen, lower back, and pelvic area.

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hotchocolate 11/10/2013

I have a bunch of questions. First of all, I have a cyst on my right ovary. Today I'm getting pain on my right side, but more mid to upper abdomen. Could this be from the cyst pain radiating?

Second, I have a bad cold/sinus stuff and can I just complain that when I cough my uterus and ovaries hurt?! It stinks.

Third, has anyone gone off endo meds cold turkey? I'm really getting tired of trying different hormones, experiencing side effects, and not finding true relief. I REALLY just want to stop them all. Has anyone done this without doctor approval? I don't think my doctor would approve, so I'm not going to ask her right now. ;)

deleted_user 11/10/2013

Complain and vent away girl! You beat me to it lol! It could be the cyst pain, not sure. I too have a cyst, I don't know which side but I'm guessing my left ovary because that's where I have chronic pain.

Since you're messing with hormones, maybe phase out instead of cold turkey? I'd just hate for something to happen if you went cold turkey :)

Jessye 11/10/2013

I know when I have cysts (always on the right side) I get that same radiating pain in my upper abdomen too. I didn't think that was what it was at first, but now that I have experienced it a few times I know that is what it was (for me, anyway). The one thing I know for sure is that it SUCKS!! I hate getting a cyst.

As for the hormones, I am still debating that myself. I was contemplating just not refilling it when I run out, and trying it for a month or so & see how it goes. But I am only willing to do that because they still need to do a lap to remove one of my tubes, & my logic is they will remove any new Endo when they go in & do that, so what does it matter if I am on the hormones or not until then? I know that is not a good answer, & my doc wouldn't like that idea, but I am at that same point of why am I suffering? Maybe I would feel better without it? Can't get pregnant anyway! Lol. I hope this helps.

VallyWillis27 11/10/2013

I stopped hormonal medications several years back (I didn't know I had endo at the time though). For me personally, it was probably the worst decision I could have made. During that time I grew two monster cysts (I know it was during that 4 years because I have had other US before I stopped my BC and nothing showed up) and the pain at times was beyond bearable. I say, if you want to try it though, go ahead...everyone is different. Who knows, you might feel better. I personally dream off coming off all if my medications...

Also, when I had the cysts on my left ovary the pain would radiate all the way up the left side of my abdomen, the GYN who did my surgery said it was unrelated, but after the cysts were removed that particular pain was gone.

Christine1976 11/12/2013

I came across this chart a few weeks ago of referred pain places and right ovary referred pain is up by the gall bladder...so a little higher than the belly button and to the right. I had my right ovary taken out a week ago and most of my pain has been in that referred pain area!!
I am on nothing for my endo any more....but I wouldn't suggest going cold turkey....I'd come off it all slowly.

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