It sounds to me like you could be suffering from Endo. From what I understand the only way to be certain is from Lap Surgery, however it can in some cases be seen with a CT scan. Mine was diagnosed with Lap Surgery and since then has been seen under a CT scan.

I am about in the same boat as you, my period started when I was 11. It was fairly normal until I became sexually active and then it came about every 2 months. It was still a fairly normal period though. After I had my first child, at age 22, is when it started to become a rather large problem. Ever since then it's worse each month and I have days where all I have is brown stuff too. I also pass clots a majority of the time. Every time right before I pass a bad clot, I get a twisting pain and I know it's coming. Back in 08 I was in the hospital with colitis and was told by one doctor that I have Crohn's disease. The other doctor told me it was just a bad case of post infectious IBS. For a while, I went on to live a pretty normal life and then June of last year after a nice night with my boyfriend, I went to the hospital the following morning because I couldn't even walk up right, I was hurting so bad. They determined that I had a cyst rupture and was in so much pain because of the amount of blood in my pelvis/abdomen. Ever since then, I experience a great deal of pain during my period and most recently, as of Jan this year, I experience the pain at least half of the month, sometimes more.

I hope you can find the help you are looking for here and if you do find you have endo, I am positive you will find a lot of really great people to help you along the way on here. We all know what it's like to suffer through the pain, the restless nights of tossing and turning along with the emotional stress because this disease isn't well known by many doctors, yet!

Good luck in your journey! You will be in my thoughts.

Thank u so much for the reply. Doctors just don't listen to me at all. They tell me it's stress and ibs!

I have had ct scan to check my liver. Do uthibk endo would have showed up in that? Or r they looking in the wrong place. What about a ultrasound?

It's possible that they could see it from a CT scan done to check your liver. I had a CT scan done about 3 months prior to my surgery and there was no endo found at the time of that CT scan. So either it was just in a place where it couldn't be seen or it wasn't there at all. I believe they just couldn't see it then because the pain never really changed between scans, only got worse.

And I can completely relate to doctors not listening. My doctors believe I am just a drug seeker, because they don't believe my pain is as bad as I say it is. I am hoping to pay money to see a different doctor on my own in the near future.

Please let me know if you have any other questions.

Thank u for ur advice. I am due more tests for digestive problems ( they have found evidence of inflamation in the bowel) maybe if they rule those out then they might look into endo? U never know!

Typically you will never find endo with a CT scan or ultrasound, unless the spots are very large. Lap surgery is the only way to verify if it's endometriosis.
Also, you could have a spot of endo that is smaller than a pea and have tremendous pain. It's a very bizaar, debilitating disease.
You should make a list of every symptom you have, and how often you have each one. You could go to livingwithendometriosis.org to see the symptoms and compare them to what you deal with. Type them up, with how frequent you have each one and take it to your doctor.
Also take a look at stopthethyroidmadness.com and see if you have any of the symptoms for hypothyroidism.

It can't be stressed enough that if you have a doctor that doesn't listen to you or validate your concerns, then find a new doctor.
I hope you find some answers. We all understand how frusterating it is.