Endometriosis Support Group
Endometriosis is a common medical condition where the tissue lining the uterus is found outside of the uterus, typically affecting other organs in the pelvis. The condition can lead to serious health problems, primarily pain and infertility. A major symptom of endometriosis is pain, mostly in the lower abdomen, lower back, and pelvic area.
This REALLY bothered me. A friend of mine put this on her facebook. It is an article by Cosmo that says "painful vaginal problems" and lists vulvodynia (which I have) but also adeno and endo. Read the part about endo- I saw RED I was PISSED after reading it. And of course let me know your thoughts. Ger!
First its vaginitis not vagitius (a little research would help). And yes dysparenuria and dysmenorrhea those could be signs of either.
I read this:
"This chronic condition, which sometimes requires surgery, affects five million women and is often misdiagnosed. Basically, the endometrial lining that is shed from your uterus during your period develops in other parts of your body, and breaks down accordinglyso you'll feel really bad cramps in places other than where you usually would. "Women in their 20s, especially those who plan on getting pregnant, need to pay attention to their progesterone and estrogen levels and whether or not they have progesterone resistance., which seems to contribute to the development of endometriosis," Gottfried says. "Endometriosis can be controlled and reversed, so it's simply a matter of diagnosing the problem and taking steps to correct it." (Typically, a doc will prescribe progesterone.)"
The "sometimes leads to surgery and reversible" part annoyed me to death. I wasn't aware that it was reversible. It makes it seem like oh take a pill you'll be fine. And reversible? That to me is saying its fixable. Which last I checked its not. It just rubbed me wrong.
First error: Endo is estimated to affect 176 million world wide, about 8 million in the US.
2nd. It doesn't "sometimes" lead to surgery. The only was to diagnose is surgery, and excision with an expert should be the 1st line of treatment.
3rd. the cause is not likely progesterone reistance...The experts believe we are born with this disease and that its tracks are laid down during fetal development. Which would explain why endo has been found in autopsies of infants who have passed for other reasons.
4th endo lesions are not the same as the endometrium. They are similar, but pathologically different (which is why Sampson's theory is BS)
5th: It isn't necessarily reversible. Though with excision (with an expert) recurrence rates can be as low as 5-15% (though maybe curable might be a term we can use)
6th: Yes progesterone is used as a "treatment" in many cases. But it doesn't "treat" endo, really just the symptoms. It can slow the progression, but doesn't stop it. Though some people ehave a lot of luck with these treatments. I myself have not, while on progesterone for the last almost 2 years I am still symptomatic almost everyday and I have been on BC on and off since my teens yet I still have stage 4 endo. So no, clearly hormones have not "treated" my endo.
This paragraph is very inaccurate. So disappointing.
This is exactly what is not helping women with this disease. We don't need "positive outlooks" we need awareness and recognition of the REAL issues/facts (and a cure would be nice)