Hot Chocolate,

I know EXACTLY what your talking about! For me the best way to describe it, its like someone is stabbing me with a knife on my pelvic bone. I also get extreme sharp pains near my clitoris. I have never had Endo of my bladder... however I started getting the pain after my ectopic pregnancy and it hasnt gone away. I also thought mine was a UTI. I have had UTI's before and the pain is similar but I am not having the burning and itching nor am I having to go to the bathroom every 2 min.

I hope you figure it out, it can never hurt to go get checked for a UTI bc if you do have one and you dont get treatment it could lead to problems with you kidneys.

Big Hugs!

Ashley Nicole
www.endothepain.com

I have the same issues. I always think i have a UTI, and tests are always negative. And also have the same spasming in the opening area-though mine feels like bruising, itching, stretching, ripping (dusgusting)too. I have severe endo on my bladder, but also Intercistial cystitis. They call these 2 the evil stepsisters-a lot of us with endo have IC. It feels like a UTI. Kegels and pelvic floor therapy can help.

i too have the same annoying symptoms. You may want to be checked for IC like yankees8 suggested. I have a lap in june, i have been peeing blood for several months. Well i cant see it, but you can see it in a scope. I have had my UA sent off to culture and nothing comes back but blood. I hate that urethra pain because it is like a pounding almost...or bruised typed feeling. it just freakin hurts! I also experience a shooting pain in a line, for lack of better description, from my abdomen down towards my pelvic bone. my doc said it could be endo on my tendon that connects the kidney and bladder. I feel like i need a bladder replacement! that is where i have the most sypmtoms of endo, last time it was also on my urerters, ovaries adn bladder. I have been lucky enough that neither one of my fallopian tubes are affected...yet! Good luck though :) My doc told me to take some muscle relaxers and gave me bladder spasm meds, pyrimdium for the pain. it helped a lot.

Have you tried D-Mannose? I was having bladder pain, especially burning after urinating about a year ago. I can't remember the exacts of the pain issues now though because since I started using D-Mannose the pain and problems are long gone. Whenever things feel off with my bladder now I take a few of these for a day or two and symptoms go away.
Initially, I took D-Mannose capsules as directed by the label. Within a month, the pain and other symptoms were comletely gone. I didn't get relapse of pain and burning two or three times a week like I would get trying to use cranberry and other products. You can look D-Mannose up on Amazon and read reviews there. That's how I found it.
I went looking for relief after getting tired of having to consume massive amounts of cranberry supplements and cranberry juice along with taking urine pain OTC products. It was getting expensive and I kept needing more and more. I also couldn't get my doctor to do anything about it other than run two urine tests that showed no infection. Thus I was on my own to fix my bladder pain issues. Luckily, D-Mannose did the trick for me.
Since then it has become apparent that my endometriosis is being troublesome again. My endo symptoms are sporadic and had tapered down as I got older. Now though it looks like I may have adenomyosis. I've been suffering from severe fatigue which progresses into falls or fainting so I'm wondering if my endometriosis is the culprit with that.

also cystex is helpful for urinary pain. Drink tons of water too!

Thanks for all the advice! It's actually feeling better today, but I'm happy to know it isn't just me. I feel crazy sometimes with all these random pains! I've heard of I.C. but I don't want to go down that route unless I have to.

I swear, you ladies are a God send! This spasm like pain is a new symptom for me since my lap in March. I thought I was crazy because I couldn't find any info on what it might be. I also seemed incapable of being able to describe the pain/discomfort to my doc. Thank you, ladies, helping me know that I'm not alone.

:)

You're welcome stephie! I love this group because I'm so glad I have people to relate too! I just wish there was a cure so we could all relate on a non pain sector haha