Oh hon I'm so sorry you're going through this. You must be so scared.

Ultrasounds are tough to read, especially when you have endo and your anatomy is distorted. Your tube may not be blocked at all, it could be something as simple as you having a cyst that attached itself to the tube. Of course, it could also be blocked - and there is no way of knowing exactly what the situation is without having surgery. Did you get something scheduled yet?

I'm so sorry you have to have surgery again. And please don't forget that it is entirely possible to get pregnant without fallopian tubes...the only unfortunate downside is that without tubes, IVF is the only option. How have you been treating the endo since your last surgery? Big hugs to you, I'm so sorry you're going through this. Chin up girl!! It'll be okay!!

That's a really unprofessional thing to say :(

I'm losing my LH ovary and tube in July however will still have my right tube and ovary.
I have Polycystic ovaries and severe endo and adenomyosis and even after all that my doctor won't talk about infertility. When I ask him he says "I can't say you're infertile, infertile means no change of having children and I can't tell you with 100% accuracy that that will be the case, there is always a chance", he is happy to say I'll have issues, but never mentions infertility because he can't be certain.

I've just frozen my eggs for my future if thats what I have to do (i.e IVF) per my doctors request before I lose my ovary.

I just can't believe doctors still use that scare tactic...no doctor can tell you you'll be infertile... I've even known women with NO tubes to fall pregnant (god knows how!) - it's just a huge statement to make without being able to be 100% certain!

Please don't let her scare you into having children ASAP or never being able to have children. It is VERY possible to have a child with 1 ovary and tube. I am so so so sorry your doctor has said this to you it makes me SO angry!!!
*hugs*

Thanks for the replies! The doc said it will happen in June, but I have to call back Monday to schedule the day. I am a little worried about not having the option of getting pregnant later, because I don't want kids. However, I'm only 23...I might change my mind later! I would love to adopt someday (because I am adopted), but I just would like the option. I am more scared that they are already taking things out, and if they keep having to take something out every year or so I won't have anything left!! Taters-that is good that your doctor says there is always a chance!! That is a very glass-half-full thing to say. & kDeezy-That is nuts that someone can pregnant without tubes! I can see how, but that is very hopeful.

BTW, I have been trying to research this tube issue the doc says I have...how come whenever I google it all I get is things about having babies? Why the crap is it so hard to get an answer that is not related to pregnancy?! Haha. I also read that a LOT of women (87%!!) think they will have problem with infertility. Which is crazy, since now there is options like freezing eggs & IVF. Plus these are normal women who don't have Endo! That is why (I assume) whenever I try to do some research all I get is baby making answers. LOL!! Thanks again guys-it makes me feel a little better, although I am still scared as hell that this Endo has become this bad & I am only 23..

I'm 22 (23 in August) - I was told at 20 I needed a hysterectomy and I changed doctors =P lol

You might have trouble (might take longer or need IVF) - but your doctor can't assume you'll have infertility. That's a very inappropriate thing to say considering its very hard to prove unless you're trying and suffering infertility.

However saying "things are getting worse and I'm concerned for your future fertility" is far more appropriate. What if you tried tomorrow and got pregnant first go? You're doctors made you think you have infertility... get what I'm saying? It's extremely misleading and unfair!

:(

I agree with everything taters is saying. Your doctor can't tell you that you're infertile until you've tried and failed to get pregnant. You can definitely get pregnant without your tubes, but only by using IVF...having no tubes makes you infertile but IVF bypasses it. Does that make sense?

Also, I have a friend who is currently pregnant with her fifth child, and she only has one tube and ovary!

The only way you will ever be told that you 100% for sure will never have your own biological child due to endo is if it completely destroys both ovaries. Otherwise there are a lot of interventions and assisted reproductive therapies that can be attempted. Your doctor needs to choose her words more carefully - there is no need to scare someone as young as you are into thinking she can't ever have a child!

Last thing: the reason everything you come up with has to do with pregnancy/infertility is because your tubes serve exactly one purpose: to get you pregnant. Removing them wont leave you with a single issue other than infertility (which again, don't freak out about, because that is exactly what IVF is for!).

Please get another opinion from a good fertility doctor. I'd hate for a doctor to remove a tube when it's not necessary. I don't like the way your doctor is handling things.

Have you had a pregnancy test, well if that's a possibility. I just thought of ectopic pregnancy but that's my brain wondering about a blocked and swollen tube. Not really a very common thing to hear about. Blocked, perhaps, but that's impossible to tell without doing that procedure you had prior.

I agree with Rosetaz, do get a second opinion before you do a surgery this drastic. How scary for you. I wish I could make it go away!

I can totally understand how in awe you are about how quick this disease gets out of hand. I had surgery and about 2 and 1/2 months later my endo came back full force and never went away. (under control now.)

I'll be sending you good energies! Good Luck and I hope something good comes out of this for you.

I'm so sorry Jessye,

I too have tube issues. It is suprising that she said it has to be removed because only my surgeon was willing to say that, not my RE, or OB. Either way, it was pretty scary and hard to go through. I had a miscarriage in March that turned out to be an ectopic pregnancy, my rt tube burst so they removed it, and that's when I was diagnosed. My OB at the time said my lft tube looked great. Then I did the dye in August (?) and it came back that I had Hydrosalpinx, where the tube was enlarged. By the time they went in for surgery (in October), my tube was not only enlarged, but totally covered in new scar tissue. It took quite a bit to get it out. In April the tube looked somewhat normal.

So these things happen quickly, and unfortunately the surgery has been suggested to actually increase scar tissue growth.

So I lost both tubes. 2 other women in the IF board also went through this procedure for the same reason in the SAME MONTH as me, which really helped because it was pretty traumatic.

I am now 16 weeks pregnant and one of them is also pregnant, and the other will have IVF this summer. Don't think about freezing your eggs now, fresh cycles are best and as long as you plan to have kids before the age of 30 or 35, you should be fine.

I think that everyone's bedside manner is horrible when it comes to this issue. I have yet to meet a doctor who said the right thing to me on this subject. They don't get it. I now forgive them for their ignorance because I couldn't have imagined the emotions that I went through when I lost my tubes.

Also, for the record my husband still calls me very fertile. Why? Sure we ended up having to do IVF, but we got pregnant naturally the first month we tried (which of course didn't come to full term because of my lousy tubes!). Plus, I had success with IVF while others do not. So don't put that kind of label on yourself. If you can have kids (natural or IVF), in my mind that makes you as fertile as they come.

Huge hugs, hope you share more, I'd be curious to know if they diagnosed you with Hydrosalpinx. If so, I found a couple good articles on it, but you are right: they are all focused on having babies because that's the main purpose of tubes. Until you want a baby, you never will miss em.

So sorry for the news. Take some time to take it all in before scheduling the surgery. No need to jump on the first surgery date - allow yourself time to digest the news, that helped me.