Endometriosis Support Group

Endometriosis is a common medical condition where the tissue lining the uterus is found outside of the uterus, typically affecting other organs in the pelvis. The condition can lead to serious health problems, primarily pain and infertility. A major symptom of endometriosis is pain, mostly in the lower abdomen, lower back, and pelvic area.

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Women's Health
/ Endometriosis Support Group

Anyone still there?

shesbittersweet
shesbittersweet
Well its January. Not seeing anyone being very active on here since before Christmas. I was hoping to turn back to this group for support as I just recently received another diagnosis - ovarian cysts.

Is anyone out there still?
SpeckledPup
SpeckledPup
Hey...Pup here. I've been checking the site intermittently also, but not finding much activity. I posted my email a couple months back for anyone who wanted to chat with me. As I said in that post, I'm a veteran with this disease.

I'm facing potentially ANOTHER major surgery, 22 years post total hysterectomy with both ovaries and tubes removed. CT scans show a colon filled with stool and a bladder filled with infection. I've known, with little doubt, for YEARS that this fucking disease is choking my organs to death (literally). GYNs across 3 states at major University hospitals from UMMC to UT to Vanderbilt blew me off to PM in 2013.

Obviously, I'm "bitter" without the "sweet". That's one big reason I don't post often. My truth with this evil disease spans decades, with no end in sight.

hollybeth61@gmail.com if you need to talk
hotchocolate
hotchocolate
Yeah, this board has been dead for awhile. I've hopped over to: http://www.myendometriosisteam.com/activities

I don't go on often, but it's a good place to post questions and get support. Lots more people over there!
KSprizzle89
KSprizzle89
Hey hey hey!! I'm still checking in regularly. I hate to hear about your new diagnosis. Ovarian cysts are pretty common with endometriosis. I was diagnosed with PCOS, IBS, Endometriosis, hypoglycemia and intestinal seizures. Hit me up if you need someone to talk to.
abithomason
abithomason
Sorry to hear that. I have cysts with my enometriosis as well. :( I understand what you are going through. Try and get some pain meds to cope with the particularly severe cysts.