There are support groups for those who love women with endometriosis. Maybe those sites could help you. Women with endo go through so much that people around us don't always know how to help and comfort us. Ask her what you can do. If she is moody, love her anyways. We often fight depression dealing with all of our symptoms so be hopeful for her. Endo can beat us up a lot. Its also not uncommon for us to not follow everything doctors say because a lot of doctors give bad advice or meds that don't help. Where do you fit in? What can you do? Just be there for her. Be patient. Bring her flowers, etc...Know she is fighting a lot. Sometimes when I just have someone with me, that is just what I need. Even if Im in pain... Stay with her.

I am so sorry both of you are going through such a terrible time. Its difficult to understand the pain we endure, sometimes on a daily basis. In my case, I feel less of a woman. I can't please my fianc like I used to because its just too painful. Our sex lives are almost non existent these days and it hurts my heart. Being intimate always brought us so close and without it I don't always feel like we are one anymore. I find myself pushing him away when all he wants to do it help. Sometimes its a pride thing, sometimes its depression.
Just stick to what you are doing. Don't tell her you want to make it work, SHOW her. It is the little things that count...
I wish you the best of luck. Women are a mystery without pain, but add a nasty disease and it makes it ten times harder.

Easier said than done but #1 I would say try not to take her depression and battle with endo personally. Sometimes it's easy to change it to "well I am not making her happy," when in reality you're probably one of the last things she is holding onto. She like a lot of us here probably struggles with the same exact feeling - like she isn't able to make you happy - so try to reassure her that she does. Other than that I agree with the others: show her your love, support, and strength to stand by her side.

I'm married and my husband and I have been together for five years, I've had my diagnosis for seven. My husband is like you, he wants to help but doesn't know what to do. Truth is you can't do much other than be understanding and supportive. I find it hard to be positive on my good days sometimes because they just indicate to me that a bad day is imminent, maybe she feels the same?

Doctors instructions can vary from doctor to doctor and our endo varies from woman to woman so maybe she's going against the doctor instructions because she finds it's better for her. When I was diagnosed a doctor told me to get pregnant. I was 22 and single and I obviously ignored that poor advice. Doctors can be misinformed too :).

My main piece of advice is talk to her. She will probably tell you that you don't understand and truth be told you can't really understand unless you have endo but that doesn't mean that you can't empathise. So tell her that. Tell her it's ok to have a day in bed and do nothing and you can look after dinner, cleaning etc.

What you're doing there is proving you care about this person a hell of a lot. And that speaks volume about YOU so don't feel defeated :).

For me, my support system with endo consists of my boyfriend, my mom, and a couple close friends. People get frustrated with me a lot during rough patches lol. I used to have a really hard time with all of them. I was sad and in pain and just wanted the people I loved most to be understanding and empathetic, and I started to feel like they weren't because they would suggest just getting off the couch or just going to class even when I felt pretty bad. I took it very offensively, like they didn't care. I eventually confronted my mom and accused her of just not believing how bad my condition was, and she broke down in tears and told me that she was frustrated that she can't do anything to help me, and that every time I complained or cried about my pain that it felt like a reminder that she was helpless, and that made her feel stressed and like a bad mom. Long story short, that's when it clicked for me. That realization allowed me to understand that when people really do care about you, they share your pain. I think it was a combination of the comfort of understanding how much my mom, boyfriend and friends love me, and also realizing that they have their own daily frustrations, and wanting to spare them the additional frustration of what I have to deal with. (Holy run-on sentence).

You obviously care about her. I think that it's important that she understands that what you say to her is coming from a place of love and not insensitivity. Try to communicate with her that you care about her and that not being able to help her makes you feel frustrated and stressed. It might take her some time to understand... it took me a couple years, but be patient. I think it would be great to encourage her to get out and do something really nice and fun that won't wear her out too much. But don't make her feel obligated or guilty, make her feel like she deserves so much more than a lifestyle of wallowing. Express that you want her to keep fighting and check out of depression for her sake, not yours.

Hopefully I made some sense. Good luck.