Endometriosis Support Group
Endometriosis is a common medical condition where the tissue lining the uterus is found outside of the uterus, typically affecting other organs in the pelvis. The condition can lead to serious health problems, primarily pain and infertility. A major symptom of endometriosis is pain, mostly in the lower abdomen, lower back, and pelvic area.
Hi ladies,
I hope you're all well, or as well as can be :)
On October 19th I go back to my specialist Gyno after my pain has re-surfaced and when in full force is about 6 times worse then before I had any surgery *sigh*
I was just wondering if someone could give me some ideas/advice/pointers.
My pain is in the general areas for me, with the same sort of pain experiences just more extreme.
I am finding though I am having rather new excruciating pain in my ovaries..before my ovaries hurt but the pain spread, now I will get EXTREME pain there on its own, it's like a stabbing pain and it will buckle over, however it can come and go, but I usually end up in bed with this pain alone. Other pain in regards to my uterus will come on its own also at times making me bed ridden. When together I feel like I'm dieing to put it mildly. Lately with pain I find it hard to sit, stand, lay or do *anything*...there's no comfort and movement can feel like a 'pulling' sensation (when in pain). I am trying my HARDEST to stay active each day, even if it's only for 5 minutes. Today I had to stop as it put me in too much pain.
Today my belly button has even started to cause me pain. I am also finding I am having STILL trouble peeing (which the gyno knows of) it doesn't feel like a UTI as I know those feelings, and it's not worsening, I am peeing alot though, more than normal and this has escalated since my July surgery. Normal for me would be peeing 3 times a day..now I am peeing every 1 or 2 hours and I wake up throughout the night to pee often and this could be a trickle.. it doesn't sting to pee but constantly feels like a full bladder at times I can get discomfort in my bladder afterwards but my pee itself doesn't feel acidic. I am still have issues with my bowel, this could be the endo which is very close to my bowel. I eat healthy, with a fibre diet even putting in some suppliments and while my BM arn't hard it is still very straining on my passing. I describe it as the constipated feeling without the constipation.
I know this is a bit of a list. However it's been building up since July, some reoccuring some worsening. I will talk to my Gyno about this, but wondered if any of you ladies had ideas? Advice? Thoughts?
Thankyou :)
Big hugs,
Tate
I hope you're all well, or as well as can be :)
On October 19th I go back to my specialist Gyno after my pain has re-surfaced and when in full force is about 6 times worse then before I had any surgery *sigh*
I was just wondering if someone could give me some ideas/advice/pointers.
My pain is in the general areas for me, with the same sort of pain experiences just more extreme.
I am finding though I am having rather new excruciating pain in my ovaries..before my ovaries hurt but the pain spread, now I will get EXTREME pain there on its own, it's like a stabbing pain and it will buckle over, however it can come and go, but I usually end up in bed with this pain alone. Other pain in regards to my uterus will come on its own also at times making me bed ridden. When together I feel like I'm dieing to put it mildly. Lately with pain I find it hard to sit, stand, lay or do *anything*...there's no comfort and movement can feel like a 'pulling' sensation (when in pain). I am trying my HARDEST to stay active each day, even if it's only for 5 minutes. Today I had to stop as it put me in too much pain.
Today my belly button has even started to cause me pain. I am also finding I am having STILL trouble peeing (which the gyno knows of) it doesn't feel like a UTI as I know those feelings, and it's not worsening, I am peeing alot though, more than normal and this has escalated since my July surgery. Normal for me would be peeing 3 times a day..now I am peeing every 1 or 2 hours and I wake up throughout the night to pee often and this could be a trickle.. it doesn't sting to pee but constantly feels like a full bladder at times I can get discomfort in my bladder afterwards but my pee itself doesn't feel acidic. I am still have issues with my bowel, this could be the endo which is very close to my bowel. I eat healthy, with a fibre diet even putting in some suppliments and while my BM arn't hard it is still very straining on my passing. I describe it as the constipated feeling without the constipation.
I know this is a bit of a list. However it's been building up since July, some reoccuring some worsening. I will talk to my Gyno about this, but wondered if any of you ladies had ideas? Advice? Thoughts?
Thankyou :)
Big hugs,
Tate
oh how i miss just being able to sleep....it's almost 5am here and i've been up since 3am tossing and turning. i finally gave up on trying to get comfortable and just got up. it totally sux.
the dreaded BM's....i don't even want to eat anymore because everything i do eat is causing intestinal cramping. especially just before i have to go.
as i'm typing this even...my left ovary is flaring up and like throbbing. anytime you feel pulling though....especially from movement, i would think adhesion's. who knows though really. i'm sorry you're suffering so much and this soon after your surgery. =(
i'm not sure any of this reply has made much sense (i'm totally exhausted) but i wanted to let you know that i hear you and your not alone. love and hugs always~jen
And the BM - omg i have been constipated pretty much for 2 years no matter what I take or eat. I had one month that I wasn;t, and it was heaven. The added pressure is not welcome. Right before a BM is excrutiating!
Sorry I don't have a whole lot of answers as I am fairly new to all this, am having a pelvic laparotomy on Friday, maybe they'll figure out why my bladder feels like this.
Hoping you get some answers.
Rachel
Have your docs looked at your bowels during any of your previous laps? My bowel endo was MISSED by the first 2 docs. It was during my 3rd lap that my new surgeon found it, and he said it had most likely been there for 10 years!!
You did make a lot of sense and what you wrote was very comforting - that I don't feel insane for all these things happening to me! I hope things get better for you, have you heard from your doctor in your home state? and how about the pain meds + pain management? Thinking of you! *hugs*
Rach - These issues started after my first surgery and havn't rectified themself. So I really do feel your pain! My mum worries.. I have yet to tell her for awhile now (a couple of weeks) when I poo it's not odd for me to bleed, but since it's fresh bright blood mum has told me before this could be tearing. Sometimes my stools are harder but not since I have made a healthier change (more water and fibre suppliments) however I still have bleeding. I'm going to have to tell him this too. However she worries because she has had bowel cancer, it almost completey ruined her bowel, she was so close to having a bag attached poor thing =( but she was a lot older than me, however insists to never be ignorant to those things! (shes right too). Again, like with Jen your words are comforting, to know I'm not alone. But Just like Jen I am so sorry you're also suffering I know things have been hard for you lately. I hope your laparotomy on friday gives you some anwers! *big hugs* I'll be thinking of you!
Jenny - Both previous doctors and the professor told me my endo was close to/on my bowel. The professor told me exicision for me would be a deleicate thing due to this, they wouldn't want to damage my bowel. Thanks for your insights it could be my bowel causing me grief. I hope things are getting better for you *hugs*.
Thanks ladies for your answers, I appreciate them so much!
*big hugs*
xoxo
I hope you get some answers soon. Have you seen a gastroenterologist or colorectal surgeon? They might be able to fix it with a lap.
((hugs))
Jenny
Im in a crap load of pain now. Im feeling sick, im so fatigued. I have no clue whats going on.
URGH.
Love to you all!
I was reading through these posts as I have the same problem with frequent urination, trouble starting the flow and urine retention(still feel like I have a full bladder after peeing. I have wondered if I might have IC.
I read Inchronicpains post about pelvic floor disorder and started researching on the computer. Well...it totally makes sense!! I have included some interesting links for everyone to look at. It says at times PFD can coexist with IC or just occur on its own, usually after trauma such as pelvic surgery!! It's starting to make some sense now! Check it out and I hope you feel better.
http://www.wrongdiagnosis.com/s/spastic_pelvic_floor_syndrome/symptoms.htm
http://www.ic-network.com/iclifestyles/june02.html
http://www.beyondbasicsphysicaltherapy.com/pfd.shtml
http://bio-medical.com/news/2002/09/pelvic-floor-dysfunction/
http://www.ichelp.org/Page.aspx?pid=361